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An Introduction To My Caring Connection Page July, 2010
(Scroll down to read may latest update: 03/20/2011)

A Note To My Dear Family and Friends,
Over the past 5 years I have battled Stage 4 (metastatic), breast cancer. Diagnosed in April of 2005, it has taken me on a journey I could not have possibly imagined. Since that time I have had 2 recurrences and have been on several different treatment protocols- some have worked, some did not. I am devoted to helping my fellow breast cancer warriors as best I can by offering breast health information, empowerment and a strong shoulder.

I have met some amazing people along my way and as I continue my personal journey, I will think of each one of them every step of the way. 

As many of you know I am an advocate for the bridge between traditional and integrative care. It is very important to know that every patient has many choices in which they do have control when diagnosed with a terminal illness.

You must ask questions and more questions of your medical teams until you get the answers you are looking for. I would encourage everyone to be an active member of their own health care team by partnering with their doctors and nurses.

Be certain that you have a clear understanding of your pathology, the treatment action plan and next steps. Be your own advocate! 

It is also important to understand that each patient has their own "blue print" to their cancer diagnosis. Not every treatment works effectively for every patient. This is why self-advocacy is so important.

During the highs and lows of this roller coaster journey search deeply for your spiritual guide. Finding inner peace is one of the best medicines available.

Surround yourself with people that you love and remove negativity from your life when ever possible. Journal!

As I continue to research and explore details of my own cancer journey, I will be sharing my findings and personal views on this page here at Caring Connections Network. I'll also be adding books and reviews to my Library page.

You can sign up for automatic emails when there are new postings or simply check the site and this page often. If you are a cancer patient, you may want to post your own health updates here at CCN using your own personal site.

I will continue my fight with breast cancer and along the way, continue to help others. I don't ask myself, "why me?" Instead, I pray a lot and know that with Jesus Christ as my true healer, what ever happens; I will be well taken care of!

Please keep me in your prayers! You are in mine.

Fondly,

P.S. Scroll down to see all my updates or click one of the milestone links below.

June 4, 2010
December 24, 2009
July 30, 2009
January, 19 2009
September 2nd, 2008
February 11, 2008
July 24, 2007
January 22, 2007
February 21, 2006

You may also want to visit . . .

Donna's New Guest Book (where you can leave a message for Donna)

Donna's Library

Donna's Archived Caring Connection Page

A Bit About My Fight With Cancer


NEW!
FAITH IN THE FACE OF CANCER-
DONNA SPEAKS @ THE CNS HOME HEALTH & HOSPICE

In just a short time I will be leaving for the airport to head to Rome and Medjugorje. As you know 2 weeks ago I received the result from my routine PET scan. The report revealed new cancer activity with significant growth in the mediastinal nodes. Yesterday I met with my oncologist to discuss next steps. We both expressed being puzzled at the report findings because my current treatment protocol had been working so well for me for nearly 2 years, so what happened?

I couldn't help but reflect back on the recent breast cancer research conference that I attended with my husband this past August. We sat in a session which validated that if a metastatic breast cancer patient is under severe stress, they are 50% more likely to developed additional metastasis. With that in mind, I told my oncologist that I didn't necessarily think my meds had failed me but rather that I had been subject to quite a bit of stress over the past several months and this may be what has caused the additional mets. We agreed that an additional scan would be wise to get a closer look at what we were truly dealing with. A hour later I had a CT scan and I would wait until this morning to find out the results. If new treatment was necessary, we discussed a plan of action.

I just received the call from my oncologist. To the amazement of both of us, the CT scan revealed 'Nothing".. No cancer at all! I was speechless. After a moment of silence as I digested this information, all I could say was; "What?, Nothing?"… and she replied, "That’s right, I'll read you the report.", and she did.

Miracles happen every day. I don't doubt this is one of them. The PET scan report was not misread, both the Dr. and I clearly understood its findings. All I know is I feel very blessed leaving for this pilgrimage today with this fabulous news! I am certain it has a lot to do with all the prayers you have sent my way over these last 2 weeks. Thank you and keep the faith. I will keep all of you in my prayers while in Medjugorje!
Peace.
Donna

October 13th, 2011 - National Metastatic Breast Cancer Awareness Day!

Hello sweet family and friends,

Today is a National MBC Day! A day which is different from all the hoopla of PINK October!

Living with stage 4 (metastatic) breast cancer is much different than beating it with Survivorship. During networking opportunities with other breast cancer patients, I've had survivors walk away from me. What I'm living with is their worst nightmare!
There isn't any "Life After Breast Cancer", there isn't any "Life Beyond Breast Cancer" it is in fact, a way of life.

The last 14 months have been a wonderful coasting time for me. According to my PET/CT scans, I've been stable or NED, (No Evidence of Disease). Yesterday however, I received the results of my scans which showed new cancer activity in the same location I've been fighting for years- the mediastinum- an area in the mid-chest wall near the lungs, heart and the thoracic duct. I will visit with my oncologist on Oct 25th to discuss next steps. I’m guessing a change of chemo treatment which will most likely bring me to the doctors office every week for a portal drip.

On this special day of awareness, please visit the following website to take action to END breast cancer. www.breastcancerdeadline2020.org.

Also take a look at this fabulous short video of Faces of Metastatic Breast Cancer.

Or http://www.youtube.com/watch?v=eaZmyDjZB30

Stay Well,
Donna

Hello Family and Friends,

It has been quite some time since I have touched base here at CCN and a lot has been going on. I made a change in my career and this decision did not come without a considerable amount of thought and prayer. I had decided that 24/7 cancer is too much and I wanted to manage my own time allowing me to decide what organization I wanted to devote my time. Therefore I resigned from Y-ME mid-May and accepted a position with Accenture Global Learning as well as taking on consulting engagements for breast cancer education.

Six years ago I left Accenture to join the Y-ME family. Accenture originally hired me with a nearly bald head and yet, when I decided to leave that role and move to Y-ME, they wished me well and made it clear that I would be welcomed back at any time.

Since I recently contemplated my departure from Y-ME, I couldn't help but feel obligated to the organization especially since I truly believe that the Lord put me there for a reason.  Now I was presented with my second offer from Y-ME. I relied on prayer to help me with my choice.

One Sunday while at church I asked for prayerful intervention, "God, please help me with my decision to stay with Accenture or move to Y-ME."  I wondered if this second offer from Y-ME was happening for a reason that I needed to be sensitive to. I continued, “God, can you please give me some kind of sign?"

I laughed to myself as soon as this prayer entered my head however--immediately  following, I looked up at the cross and noticed the risen Lord hanging on that cross, I’ve looked at that cross every week but that day it was clearly much different.  As I glanced up at him I noticed his arms open wide as if lifted up to heaven, his body straight down to his toes. There it was clear as day, a "Y" for Y-ME!

I turned to Tom and with a giggle in my voice shared my decision, "I'm accepting the position with Y- ME!" I have never regretted that decision and have enjoyed 6 years with

Y-ME National Breast Cancer Organization. But now what? Can I really leave the organization without another sign?  Of course not!

Once again I asked for a sign and for weeks got nothing. Not knowing what to do, I accepted a phone interview with Accenture's HR department and thought to myself, if I was offered a position back at Accenture, I could always decline. The HR interview went very well.  I was advised of a new consulting firm that works with Accenture on all their hiring needs.  The name of this new firm is "BC Forward".  Now you may think I've totally flipped but that firm name was my “sign”. What immediately entered my mind was, " Breast Cancer Forward", in other words, 'It’s okay Donna, move forward!" 

I can’t tell you I understand everything behind these powerful messages, I just know what I know! I’m only to assume that as his instrument, I will be able to assist others in some way and it turned out that maybe I will.

One week after I accepted the position I received a call from a co-worker who advised me that one of the senior leaders who I had interviewed me just found out that her dearest friend was diagnosed with breast cancer. Knowing my history, this leader asked if I could be of help. There ya have it! I am enjoying my new role with Accenture as a team member of the virtual learning group.

I will be attending a conference near Orlando in August, the Era of Hope. This conference run by the Department of Defense (DOD) is an opportunity for previous advocate panel members to hear about the progress made with funding distributions.

Each scientist will be discussing their research and the progress they have made with DOD funds. It should be a very interesting and informative conference. Tom will be traveling with me and we will be able to visit with my parents for a couple days while in Florida. I am also planning to participate in a Fall DOD panel as I have in the past. My other areas of interest are becoming more involved with the Metastatic Breast Cancer Network (MBCN), an all volunteer organization supporting metastatic breast cancer patients. You can learn more about this organization at www.mbcn.org

On the health front, I just completed my routine scans and will know the results later this week. No worries, I’m in good hands.

The most exciting news to share is that my son is getting married in two weeks.  When I think back to April 27th, 2005, knowing the fear of time and thinking of life’s precious moments that I may be missing, the wedding milestone for my children was one that brought tears to my eyes. Well, now my tears will be tears of joy! I'm here, feeling good, with hair and I will be decked out as the "mother of the groom" in just two weeks. Derek is a very lucky man to have found his true love in our sweet future daughter in law, Joanna. I feel extremely blessed to be there with my husband and family to share Derek and Joanna's very special day.

Life is good.
Thank God!
Donna

This past week was filled with my routine scans. What wasn't routine is that I was not nervous about the results.

It was an interesting feeling not dwelling on the outcome or the "what if's", as I usually do. I have made a commitment to myself to worry less, live more and do what I can do to stay well. This is not an easy task and certainly not one I can do alone. Christ walks with me on this one! I have been constantly reminded in one way or another that he is the one I have to lean on, that he is the one who will call me home according to his will! So why worry?

I had my scans on Monday. On Thursday I arrived at my doctor's appointment for a consult and treatment. As I settled into the patient room waiting for my doctor, thoughts did come to mind as I eagerly waited to hear about my scan results. "Will I have hair for my son's wedding in June? If I do need to change my treatment plan, most likely I will lose my hair. Thank goodness for a good wig!"

Just then the doctor walked in with all smiles. "How are you Donna? Your scans look great!" Smiling myself, I said, "Great huh? Does that mean stable?"

"Yes," she replied. I then asked whether if my scans have been "stable" since February of 2010, is it possible that what is being seen on the PET is scar tissue rather than cancer?

She agreed that it was possible, however the only way to be certain would be to have a biopsy. Having a biopsy every time I challenge a PET scan doesn’t seems logical so I left the examining room happy about the good news and with a copy of my report in hand.

After receiving my Profilia treatment, (a shot replacing the Zometa treatment), I left the office. I got in my car, opened the PET scan report and read it for myself. This is what I read:
 
"No discreet lesions are seen to suggest metabolically active neoplasm. The focus of slightly increased metabolic activity seen within the body of sternum previously is barely seen on the current examination."

I am not a doctor, however this clearly tells me No Active Cancer Activity! Praise God and a happy dance followed that reading!

I called (or texted, rather) my husband, my children, my parents, my sisters and close friends telling them the good news. Everyone was delighted of course and then came some of their questions
     "So are you in remission?"
     "When do you stop chemo?"
Once again, I explained that a MBC (metastatic breast cancer) patient never goes into remission. Either the cancer is active or not. Right now, it is not active! I also explained that I would not be going off my treatment.

Most often MBC patients rarely go off of treatments completely. It would be like a Type I diabetic stopping insulin because of a good A1C, not possible.

A few people may think to themselves, 'Why worry about taking meds, won't Christ help there too?" Probably, however he's blessed me with common sense as well as trust in him. I'd hate to disappoint him by being foolish.

I am celebrating this glorious news and I am extremely grateful knowing I will have hair for my son's June wedding. I am leaving for Florida soon to visit with Mom and Dad. I can guarantee you that we will all be doing the happy dance!

Take Care and celebrate life!

Donna
 

Donna & her book coach Briget
 

I feel great and have lots of energy. My oncology appointment went well although I have some difficult decisions to make in the coming weeks. As you recall, I received my German lab results and find much comfort in knowing some of the reported data from this German Lab who specializes in what they do best, chemo sensitivity testing. To understand this update fully you may want to read my previous journal entry below.

I had several routine questions for my oncologist and some not so routine. Get a flu shot? YES.
Maintain 3 month scans and visits? YES.
Then it came to the good stuff... What about the German testing? And this is not an exact quote, "There is no evidence that this test is valid. I don't believe a word it says. It tells you that your current treatment is not working, yet it is keeping things stable." I of course, corrected her. I opened the document and showed her where the Tykerb is listed alone and the Xeloda is at the top of the "best option" list.

Actually, the combination of the two drugs are not listed on the report. The drugs are listed separately. The fact that these two drugs are combined for my treatment offers up an entirely different story.

She went on to advise that,"There is a lot of health CRAP out there" and "Are you still on supplements?"

A huge "YES" was my reply. Being that my creatinine levels have been slightly elevated, I have not been able to have my monthly Zometa treatments for the past 2 months. She asked me if I would go 30 days without any supplements to see if they are the cause of the creatinine levels changing. I told her I would do this and I'm hoping to prove her wrong! I will address the creatinine levels with my integrative doctor and also get his opinions.

When the German reports were presented my integrative doctor sent my oncologist a very lengthy email with supporting data on the benefits of a Vitamin C drip treatment protocol. It all sounds so interesting to me and I've spoken to other patients who have had great results with this as complimentary treatment with chemo.

My oncologist thinks it's all, "hog wash!" It makes my head spin. It sure would be nice if both doctors would communicate with each other but NOOOOOOOO, gosh forbid! My Integrative Dr. made an attempt that went ignored. What's a cancer patient to do?

My next steps are to do additional research and make my own decision. If this means a new oncologist then so be it. I so respect her role and education yet it seems to be a limited and a closed book, if you know what I mean.

I'll never forget when I first went to her and asked if she was going to check my vitamin D levels. She said, 'No, that’s not necessary, most people OD on vitamin D, they aren't low."

Yet my previous oncologist followed this closely and so does my integrative doctor. Yeeeeeezz . . .  what kind of message is that? I've read many articles
confirming a link between insufficient levels of vitamin D and breast cancer. But who am I? No medical degree here, I'm just a patient who lives with this MBC disease every single day and has to rely on others to advise me regarding treatments and processes.

For now, I'll wait for some additional input, continue my own reading and pray over the subject. Then I'll come to some kind of decision.

Until then I continue to work on my book. Thanks to my amazing book coach, Bridget, I am on my way to submitting the first 50 pages to a New York agent. To keep updated on my book process, connect via my new blog, as well as my CCN journals. Visit my new website at www.donnajpelletier.com. 

October will be a very busy month. It is Breast Cancer Awareness Month. October 13th is National Metastatic Breast Cancer Day.
Media events and lots of things happening. Ladies, don’t forget to get your mammogram. Check our links on the front page of CCN.

Life is confusing but good. Sending you a cyber hug!

Donna
 

The German lab isolated CTC (Circulating Tumor Cells or micrometastases), identifying expression levels of certain genes). A molecular analysis was completed to determine resistance factors and drug targets. Treatment options were broken down into three categories:

1. Therapies without indications of resistance (7)
2. Drugs with intermediate sensitivity (2)
3. Drugs with minor therapeutic efficacy expected (8)

The analysis also included recommendations for complimentary therapies.

Tom and I met with my integrative doctor to review the report in detail. As it turns out over the past five years I have been put on 5 treatment plans in the minor therapeutic category, one in the intermediate and my current treatment plan (Xeloda), happens to fall into the 1st category, without indication of resistance.

What all this means is that my body has been put through many treatment protocols that clearly were not designed for my particular cancer.

If testing such as the German lab tests were available in the U.S., patients could avoid senseless treatments that only break down the body with no positive response to fighting cancer activity. What a shame! I am glad to know that I am currently on on a chemo treatment that is in the top category of least resistance. This is a wonderful thing.

The German analysis also included several suggestions for supportive complementary or alternative therapies which were broken into the same 3 categories. The most beneficial suggestions include Graviola, Curcumin or Haelan951 (fermented soy-extracts).

These agents/therapies are known to modulate MDR1 function which is a function that was found in my CTC and therefore makes my cancer resistant to various treatments. So interesting . . . Additional recommendations include a Vitamin C drip. A deficiency was detected in the CTC.

So what do I do next? . . .  I decided to send the analysis report to my oncologist in hopes of gaining her valued and respected opinion. My integrative doctor also sent her supporting documents showing benefits of the vitamin C protocol.

I shared this information weeks ago and to date, I have not gotten a reply on this subject. When contacting my oncologist a second time, I was advised that we would discuss this topic at my next appointment which is scheduled for September 22nd. The outcome of this upcoming appointment will determine the choices I need to make for myself. I am hoping that my oncologist will support my decision to add the Vitamin C drip to my treatment plan. In the meantime, my integrative team increased my curcumin dosage and we are investigating some of our other options.

As an advocate for myself and others, over the years I have learned so much about the business of medicine. It's no different than any other capitalistic business. In my opinion, it is an environment which assists patients as best they can as long as they can make a profit.

I long for the day when traditional medicine, which typically determines a symptom and therefore prescribes a drug, what's known as "cookie cutter" medicine, will add an integrative approach offering a customized whole body treatment or what I'll refer to as "designer" medicine.

Integrative care is more than simply adding a massage, yoga and acupuncture treatment to your protocol. It is about determining deficiencies in the body and trying to find balance in those deficiencies to help build a strong body. A strong body is key when undergoing chemo after chemo resulting in the destruction of not only bad cells but good cells as well.

I believe we are making progress in knowing that special interest groups within the science communities continue to push forward with research which presents science-based knowledge supporting individualized treatment protocols leading to true integrative care plans.

I am looking forward to my September oncologist appointment. I am hoping that my decision to work with one of the "top docs" in Chicago whom I truly admire and respect will support my efforts to combine initiative therapies to compliment my traditional treatment plan.
If not, it may be time to move on . . .

Yes, its all about ME!

Hugs,
Donna

It was scan time this past week and I met with my oncologist Wednesday to get the results.
The scan report showed all is "stable". No new growth and what I'm currently fighting has not grown. This means the mediastinal node involvement is still present and I will continue on my current chemo plan.

As you know I am very interested in Functional medicine, also known as Integrative medicine. I've learned from a very dear friend who is a highly educated researcher, that in this field of Interest there are 3 "to-do's" for self help.
1. Read Knockout - by Susan Somers (See the link below for more information.
2. View Burton Goldberg's Video on curing Cancer
3. Subscribe and keep up to date with Life Extensions Magazine
(A cutting edge subscription in medical science)

After following all three steps myself, I decide to pursue having Germany's Chemo Sensitivity blood test. This blood test (approximately 10 tubes of blood), will be an analysis of molecular detection of CTC's (circulating tumor cells) plus testing for use of alternative agents in conjunction with standard chemotherapy. Exciting stuff. Just two issues; I didn't want to go to Germany to have this done and the $2800 fee is not covered by insurance.

I spoke to my oncologist about this option and she was familiar with the topic. She asked me to send her an email with the research details and we could discuss it. I put together a very lengthy email with all the scientific details and links and then had my sweet researcher friend review it for accurate content and language. I sent the email as requested. I received a one liner reply, "I will draw your blood and you can ship it anywhere you'd like." Reading between the lines I knew it meant; "If you want this done, fine. I will not lose my job over this."

With that note, I decided to forward my email to my integrative doctor.
Within 15 minutes, I was BCC'd on an email to Germany inquiring about my testing and more importantly, asking about how to partner with Germany to learn more about the research and international therapies. I was delighted. On June 7th, I will be having this Chemo Sensitivity blood work completed.

I will have to wait 8-10 weeks for the results to be returned from the German labs.

I hope you and your families are doing well.
I'm feeling very blessed these days and continue to put all my worries and concerns in the hands of the Lord.

Donna

* For more on this book click the link below:

Knockout: Interviews with Doctors Who Are Curing Cancer--And How to Prevent Getting It in the First Place  or visit Donna's Library Page

You Can't "Fool" me on April 1st.

The last couple months have been very busy. I am learning the in's and out's of being a patient at a major University hospital and I continue to be happy with the changes I have decided to make with my medical teams.

My appointments with my new oncologist have done fairly well. We initially talked about the routine PET/CT Combo scan that I would be getting every few months and on February 25th I arrived at RUSH to find out I was scheduled for a CT scan, not the PET/CT. I went through the drill and had the scan done and the results showed "no active cancer."

Although this is good news. I was not comfortable hearing this without knowing the PET/CT was done. When I met with my doctor, I told her I thought I was getting the other scan and she couldn't figure out why this happened. "Nice!"

She did go on to schedule the PET/CT which was completed this past week. The results of this PET/CT (combo scan- and latest technology), told a different story. I have two spots of active cancer in the mid Chest area. They are both reported as very minimal activity yet none the less, it was not a clean scan. Should I preach to you any further about being your own advocate? I think not.

I will be staying on my current chemo plan and my doctor said there is no need for me to see her every month. She has changed my appointments to every two months. I still need to get my IV drip of Zometa each month which hopefully can be done with home nursing and I wont' have to drive to the city for that treatment.

I'm feeling settled with the results of the recent scan yet of course would prefer to have it gone. The truth is the demon is never really gone with metastatic cancer. Those metastatic bugs just float around until they decide to surface and make trouble. In the meantime I am learning more and more about alternative treatments that are available to me and I may very well be traveling to pursue such treatments. More on that at a later time.

I can't submit this update without reflecting on my sweet friend Cathy Bernas' recent updates, here on CCN. I received a call from Cathy on March 9th, telling me she has been told there was nothing else they could do for her Stage 4 lung cancer (she never smoked)and that she would be entering hospice care. My heart stopped for a moment.

It was a moment in which reality slapped me awake with a sad heart. I recalled the day I met Cathy back in July of 2005.After a couple phone calls, we planned on meeting for the first time face to face at Warrenville's Cerny Park holiday event.

It was a very busy place, lots of food and fun booths. Music with some really good bands and lots of people. I searched for my new friend in her baseball cap covering her bald head, she looked for the same sweet style on me. I searched for about an hour without much luck. Then I heard a voice over the crowds and even over the music. It was Cathy yelling my name. I turned to see her as she was running towards me from the other side of the park. I was so excited, I began to run to her as well.

Lets imagine this...
Two bald women in a crowded park yelling each other's name running toward each other into a huge hug! In my brain it always runs in slow motion... I finally got to meet my new friend. Little did I know all the life lessons she would be teaching me over the course of the next few years.

Cathy has taught me a great deal about faith, strength and so much more. At one point I recall driving to her place after she received a bit of bad news. I stood at her front door with my "save the world" attitude and one of my favorite desserts, the Corner Bakery's Cinnamon Cake. I prayed on the way to her house that I would find the right words to share and when Cathy opened her front door, there I stood with my cake, balling!

I just broke down.... She put her arm around me asked me in and offered comfort to me! That is the true heart of Cathy Bernas! One marvelous lady, wife, mom, sister, daughter and friend. Now my friend is preparing for her new life and once again I find strength from her during this process.

After Cathy called me a few weeks back, I went over for a visit. She said something on that day that made me think. She said, "I asked God for five years and he gave me 5 years." And she was smiling.

If you are not familiar with the timeline of a stage 4 lung cancer patient, it is not very common to live much over 8 months, very rarely up to 5 years.. up until now. Prayers are answered!

I love you sweet Cathy! You've made me a better person. One day I know we will be rejoicing together with our wonderful, gracious, loving Master. . . Until then . . . a little cinnamon cake never hurt anyone!

Xo
From the heart,
Donna

I have contemplated a change in my oncology team for some time. I know that my former oncologist, Dr. Cohen, had my best interest at heart however I have had many indications that it was time for a change. I had a consultation with Dr. Cobleigh over a year ago. At that time, I was extremely pleased with the consultation and wanted her to be my oncologist.

She explained that at that time she wasn't able to take me on as a new patient unless I was being mistreated, which I was not. Since that visit, I knew in my heart I would end up under her care one day.

She is, in fact, one of the top breast cancer doctors in the Chicago area as listed in this month's Chicago Magazine. Dr. Cobleigh is very well respected in her field as a breast cancer specialist and researcher.

I quite simply admire her professionalism and genuine spirit. When I left her office that day, I made the decision to make certain with every future scan, she was included on the report distribution.

Once I decided to change my care team, Dr. Cobleigh was my first phone call. I scheduled an appointment with her then Tom and I made our way
to RUSH University Medical Center on Dec 23rd. She accepted me as a new patient and I then had the necessary conversations with my current oncologist and radiologist. This type of major change is easy, yet it is not.

When you see a medical care team routinely for four and half years, you form friendships, learning about their personal lives, families and friends. My chemo nurses and my radiology technician are very important people to me. They are the ones that took care of me during my routine visits and they are the ones who make this difficult journey a bit easier in their own comforting way. That meant so much to me, I will miss them.

"A heart felt thank you to Julie, Barb, Mary and Judy. You ladies are very special people and its because of you that all my routine trips to the doctor's office or radiology office were made so much easier. I will miss you and I wish you good health and happiness always!"

Dr. Cobleigh has already made changes to my dosage and chemo treatment pattern. She has reduced my dosage and made a change to my 2 weeks on and 1 week off the chemo plan. It is now 1 week on and 1 week off.

She advised that in clinical trials, it has been proven that a patient on Xeloda can avoid the toxic levels by administering this chemo with the 1 on/1 off pattern. I'm all for that, my hands and fingers are already suffering. They will hopefully get better with this new plan. My next scans will be mid March. My next visit with Dr. Cobleigh is the beginning of February.

Overall I am feeling very well these days. I made two New Year's Resolutions for myself...
1. Turn over all of my cancer worries to the Lord. while I concentrating on Living!
2. Finish my book proposal and send it off to find an interested agent.

A long weekend is around the corner and Tom and I are looking forward to spending it good friends at their cottage in Wisconsin.
Thank goodness for long weekends!

Stay healthy and happy!

Donna

Send messages, comments, good wishes or questions to Donna by clicking here.

My scans taken a week ago reported good and bad news. No new cancer activity in the bones, lungs, liver or brain however; the activity in the mediastinal node (mid-chest area) that I have been fighting since February, has doubled in size. My tumor went from 5mm to 12 mm. This is a 1/2 inch tumor which doesn't sound too drastic until you think about the aggressive nature of this HER2 pathology which has more that doubled its size in a short amount of time. I had been on the chemo Gemzar since February and previous scan reports showed tumor reduction or at least stable. On Oct 5th I took myself off of chemo, a well deserved break and six weeks later, I have this growth report from my scans.

I often talk to cancer patients expressing the importance of being your own advocate. I understand that this type of information can some times seem like too much; however, STOP! Think about it. Last August when I had my scans completed the radiology report came back with that same mediastinal node lighting up on the film as cancer although unchanged, (stable). My Oncologist overrode the radiology report stating it was simply "scar tissue". I was given the choice to either go off chemo completely and see what happens on the next scans (this recent scan), or if I wanted, I could stay on chemo for a couple more treatments. I opted to stay on chemo for a bit longer taking myself off during the month of October to build my energy level for my cycling event. It scares me to death to think "What if"... What if I followed the option to get off chemo back in August? Would this cancer be in my lungs or my brain?
Maybe. Maybe not. If you recall, I did further research educating myself on how to read PET scans which confirmed by personal choice to stay on treatment. Self advocacy is critical. Now I have other concerns such as, have I chosen the right Oncologist.

My new treatment plan will consist of a Tykerb and Xeloda combination. Tykerb takes the place of Herceptin which has failed me time and time again. Xeloda is a chemotherapy drug. Both are taken in pill form. I will also continue Zometa which is administered through my port once a month. Both of these drugs have side effects just like all the others. Xeloda has many unpleasant side effects including; severe diarrhea, mouth sours, hand and foot disease (red painful swelling and peeling of the hands and feet), fever, nausea, need I go on? What fun.. It also states hair loss however; I know two other patients on this treatment plan that did not loose their hair. Quite frankly, I don't give a dam about my hair, I just want to get rid of this demon!

On Monday I know what will happen, it's a ritual, I will get all those pills out to take, look in the mirror and think to myself, "Here you go again Donna, don't get lost in the visual treatment, lets kill that demon and move on." I'll also go back to the mirror hours later hoping not to see an additional eye on my forehead or another nose growing out my cheek. Thank goodness that hasn't happened--yet!

As I grow in prayer, I will pray that the good Lord helps me to fall completely in love with him, allowing him to do his will and allowing me to heal without worries.

I am looking forward to Thanksgiving, Christmas and a Summer 2011 Wedding for my sweet Derek and Joanna. I have so much to live for!

I have all the kids home for the holidays which makes me so happy.
Holiday Blessings to you.

Donna :)

Hear the radio interview with Donna recorded in Las Vegas on 10/22/09. In Windows, click to play with Windows Media Player. Right click to download and play.

Tom and I met with my Oncologist today.

Both of us were a bundle of nerves walking into that appointment yet joyous walking out. That's right, "joyous'! After my oncologist reviewed the films in detail he decided he did not agree with the report findings.

He contacted the imaging center and spoke with the radiologist who wrote the report and remains confident that the films tell another story.

The new sites on the bone have actually been there on the last few scans, and the current mediastinal node appears unchanged. What this really means Is that all three of us examining the films agreed that the bone sites are most likely scar tissue and the node involvement is so small and unchanged that it is very possible that this too may simply be additional scar tissue.

With that said, the choice was to either stop chemo all together for 3 months and do scans to determine next steps, or remain on my current chemo treatment plan for an additional 3 months and then have my routine scans, knowing that if the films look the same, I will stop chemo at that point.

I decided to stay on my chemo plan for another 3 months, do scans in November and take it from there.

Since Friday's conversation with my Doctor, I have had several conversations with Jesus and the Holy Spirit. I prayed for strength, understanding and wisdom to make the right treatment decisions. I also prayed for my Doctor to have insight that will bring me to good health. On the way home from our appointment, I reflected on my prayers feeling thankful and blessed.

Thanks for all the kind words and well wishes. Chemo is not fun. But in the scheme of things, its not all bad either!!

Donna

I had my routine scans on Thursday morning; a chest CT and a PET scan.

I received a call from my oncologist on Friday afternoon with the report results. My breast cancer activity in the mediastinal lymph node area continues to be active.

It hasn't grown, yet it hasn't shrunk.

They also reported two new sites of cancer activity in my bones. My oncologist will be reviewing the films on Monday morning and Tom and I will meet with him on Thursday to discuss next steps. Most likely I will start a new chemo treatment that is a bit more aggressive.

I am feeling disappointed and a bit nervous, yet like I always say, "A girl's gotta do what a girl's gotta do."
This is no exception. I am fine-tuning my nutritional plan to exclude some meats and some dairy.

I continue to read a lot about nutrition and cancer, I find it very interesting.

Thanks for the continued prayers.

Donna

Refreshed by "Girly" Time!

A few months back a cruise was organized for "ladies only"! What a fun idea, thanks Lisa!

I was hesitant at first wondering if I would be on chemo or not. Would I feel okay? Would I have hair? (That’s the vain part of me.) I went ahead and booked the cruise taking out all the insurance possible and hoping for the best. Within a short amount of time I was put back on chemo and had a self talk with myself, "Donna, you're going on this cruise because you need it!" and its true, I did need my girlfriend fix and oh boy did I get it and more!

A lovely group of 14 women went sailing on Royal Caribbean, setting sail on April, 27th 2009, Oddly enough, my diagnosis date 4 years earlier. I couldn't have asked for better medicine. The dynamics of this group were amazing.

Each woman in her own way offered something special to the rest of us and we all had an absolutely fabulous time. Some of the ladies I've know for some time and they truly are dear to my heart. Some of the ladies touched my heart for the first time and I am a stronger person because of them. All in all, we each added something to the group that is unexplainable. The Majesty of the Seas took us to the Bahamas. We visited Nassau, Coco Cay and Key West. The ship and destinations really didn't matter, the company is what made this cruise experience such an amazing get away.

We explored the islands, we enjoyed the sun and swam. We danced, we sang, (some of us more than others), we performed, (yes, on stage and off), and we laughed, cried at times, and laughed some more. Some how, we always ended up around the piano bar in the evenings with other cruisers looking for us to start the party.

What else is a "girly" cruise for? A memorable moment around that piano bar was when two ladies in their 80's approached us telling us they loved watching us having so much fun, was it okay if they followed along...and of course it was.

There was also a group of young ladies in their 20's, watching us sing and dance, I'm sure they thought they were witness to older ladies during their mid-life crisis. We asked them to join us at the piano bar and they did.

We had three generations of "girlfriends" enjoying the music, dancing and each other. I hope one day a few of those 20 year olds are fortunate enough to cruise again when they are in their 50's with their special girlfriends. And I hope they experience a moment when one of them says, "Oh my gosh, remember those older ladies on that cruise we took when we were in our 20's?, Now we are them!". . . . and the circle of life and girlfriends goes on.

Royal Caribbean should have paid us to be on that ship! Yes, the offer remains open...My husband and family will always be number 1 in my life however; I would not be the same person without my dear, sweet, wonderful girlfriends!

We all returned refreshed and ready for what life brings. Me in particular  got to forget about breast cancer for an entire 5 days! On the plane ride home I thought to myself, "I feel too good to have cancer. Knowing that I have chemo waiting for me on Monday is simply pathetic!"... THAT'S feeling refreshed!

I love you ladies dearly. I can't wait to plan our next "girly" trip!

Hugs from me,

Donna 

Fabulous at 50!

Yep, that's right, 5-0, 50! How the heck did that happen?
I had a wonderful yet intimate birthday celebration over the weekend and it could not have been better.

Tom really wanted to have a huge birthday bash for me however; he respected my wishes by not doing so, besides my birthday gift from him is the cruise next month and I am so looking forward to that. I was spoiled with lots of flowers and gifts. Even without the huge party, I was made to feel special in every way. My birthday fell on a Monday, my routine day for treatment. I opted to change that and have treatment on Tuesday.
Who wants to celebrate their birthday by sitting in a chemo chair? Certainly not me.

Treatments are going well so far. It sounds so funny to say that.. what could possibly be "well" about chemo?

I am learning how important it is to keep the meds going during those questionable days after treatment to help with the nausea and flu like symptoms. On the good days I start my mornings at church. This is the holy season of Lent and I am really enjoying it. A great way to prepare for my favorite holiday of all, Easter. Starting your day with positive, faithful energy is quite amazing and feeds the soul. Wonderful medicine with awesome side effects!

Thank you for all the well wishes and birthday wishes too!

Fondly,

Donna

Jill, My Dancing Partner

Colleen, Donna, Lisa

Donna & Carol

Chari & Emily

Me

All good news to me. With that in mind, we decided to go with the chemo treatment of Gemzar, along with my routine Herceptin and Zometa. Gemzar is tolerated a bit more than most and I might not lose my hair. The usual side effects like nausea, fatigue and such will have to be monitored. This is a weekly treatment routine which will look something like this:
Week 1 - Gemzar and Herceptin
Week 2 - Gemzar and Zometa
Week 3 - OFF (Whoohoo)

Dr. Cohen has no problem with me taking time off for my April cruise and I'm glad I might even have hair for the occasion. When reading through the detailed information on Gemzar it gave me a few hair tips. Only wash your hair 2 - 4 times a week. Do not color your hair. Do not use heat on your hair this includes the blow dryer. Do not use any form of styling products . . . Well heck, don't they know its all about the product!!! I'm supposed to be glad to have hair yet it may be stringy, wet, gray and flat . . . Oh joy! I couldn't help myself but think, maybe I'm better off without–(just for a split second), I will be glad to keep the hair.

Once home from my appointment and feeling better knowing I had a plan, I find that Dr. Cobleigh from one of the city hospitals, had called wanting me to return the call as soon as possible. She was the one who I met with for my 3rd opinion and I liked her very much. She is a specialist in metastatic breast cancer and a well known researcher.

Very well respected in her field and a good doctor to have on my side. Since my meeting with her I have kept her on the recipient list for my routine scan results. There may come a time when I will need her. When I returned her call, she advised me that she had reviewed my scans and wanted to know if I had decided on treatment plan. What timing!

I explained to her the treatment plan that Dr. Cohen and I chosen. She was disappointed because this particular treatment plan was not part of the process for me to qualify for her current study. This TDM1 study is for patients who fail herceptin and other treatments and is becoming very promising for the metastatic patient. After talking to her about the pro's and con's she said she would send Dr. Cohen all the information to consider. I was delighted that she contacted me and was current with my health status.

After speaking with Dr. Cohen and once again reviewing the details of the study, I decided not to change my plan of action. Dr. Cohen agreed. I sent the following email to inform Dr. Cobleigh of my decision;
~~~~~~~~~~
Hello Dr. Cobleigh,

Thank you for contacting me to discuss the options needed to join the TDM1 trail. After giving this much thought, and consulting with Dr. Cohen, I have decided to continue with the plan of Gemzar combined with Herceptin and Zometa for now. I made this decision for the following reasons;
1. The trial ends the end of this year and the possibility of me meeting the this deadline through both steps of the recommended treatment (tycerb/xeloda and if intolerant/progression, Anthrocycline with progression), I feel are slim.
2. Given the information from a recent NW conference, it is advised to stay on Herceptin as long as possible until true failure.
Both Dr. Cohen and I do not believe that Herceptin has failed me at this point in time. I truly appreciate you taking the time to offer your thoughts and recommendations. I will continue to include you as a recipient of my scan results.

I wish you great success with the TDM1 trail and remain open to future treatment options and suggestions.
Fondly, Donna P.
~~~~~~~~
On Monday, February 16th (Tom's birthday), I will start my Gemzar treatment. I will be on the 3 week cycle for 6 months which takes me to August. I will receive another round of scans in 3 months to determine progress and even if the cancer appears to be gone, I will remain on the plan for the full 6 months. A plan that will hopefully take care of any microscopic demons.
I am stocking up on the nausea medicine and other necessary items that I might need.
Having a plan is a good thing. It offers me a sense of control. Besides, the sooner I start, the sooner I'll be done, hopefully for a long, long time!
Thanks for caring. I love you.
Donna

The holidays have come and gone.The children were home from school and my house was filled with family.

Our tradition is to celebrate with the Pelletier family on Christmas Eve which is a typical Italian feast. All kinds of fish and other goodies for those that prefer something else. Santa makes a visit to check his nice and naughty list and passes out candy canes. My favorite part is "ladies time!"

All the ladies, 21 years and older gather together in the dining room for a special toast and gift exchange. Its always fun when we have graduates
to this very special girly event. I'm not sure who is more excited the new 21 year olds, or us veterans. Since my daughter Diana and I hosted this year's Christmas Eve, we served a new surprise cocktail, a Candy cane Martini!... Ummmm good!

There is no celebration like a Pelletier get together. Since Tom is one of ten children and most gather with us, we have a large fun group filled with lots of love, laughs, food and drink. They truly are very special people who I love very much.

Christmas Day takes us to church and then a celebration with my sisters and their families. This is a very special day, not only in celebration of the Lord, but also because I know I'll be in church with my entire family, Tom, Diana, Derek and David. Tom and I don't push our adult children to church. We simply lead by example and pray they'll grow closer to God on their own.

We have gone to my sister Chari's on Christmas day for several years. Chari is a gourmet cook and gets excited about every single detail, from dressing the table to the picture perfect meal that is served. This year after dinner and the gifts were opened, we all sat around and listened to some of the children sing and play guitars. My niece Emily has the voice of an angel. Her vocal lessons are paying off in a marvelous way. Her brother Wilson played guitar and sang songs that he wrote. He was wonderful. My son David made the night extra special by also joining in playing his guitar and singing.

At one point I asked David, "Why don't you play something you wrote?" He glanced over at Wilson as if to look for an approval, and Wilson gave him a "yes" head nod.

David said, "Okay mom, I'm going to sing a song that I wrote when you were first diagnosed with breast cancer. I've only sang this for Wilson up until now." He then began his song and played his guitar.

Ever have one of those "wow" moments that takes your breath away? This was one of those moments. David sang from his heart and there wasn't a dry eye in the room. It was amazing and I wish I could have frozen time. THAT’S what the holidays are all about! A created memory to live well beyond the moment. I've thought about that song every day since.

New Year's Eve has been celebrated with the same amazing people over the past 18 years. New Year's Eve just wouldn't be the same without the Pelletier's, Bartus' and Devine's making plans together. We rotate houses and the hosts get to pick the restaurant for dinner. We then go back to the house to bring in the new year. Sometimes we make it to midnight. Some times we celebrate on New York time. Either way, it’s a celebration that is a lot of fun.

January is here and that means its scan time for me. I'm sitting here the day before my scans only allowed to eat protein, and dreading tomorrow. As soon as the new year turned, it brought with it the television adds for the 3 day breast cancer walk and other cancer support ads. 

Normally I love seeing these commercials, realizing how these people are helping me and so many others; however one day I walked away from the
television thinking to myself, "Good for you... I'm a 3 month survivor and that's all I'll ever be!" Scans every 3 months to tell me if I have another 3 months.

Don't misunderstand me, I am very happy for those thousands of women who have won the fight, it's just different being a metastatic patient. So different and not so fun. Tomorrow I'll go through a PET scan, CT chest, CT brain and then wait for results. One day or two days will go by then I'll learn if I can keep my hair, if I'll keep my energy level, if I'll continue to feel good like I do right now, or will it be chemo time.

Funny, this cancer thing, it just creeps up on you. You can feel just fine one day and yet one scan later, everything can change. I'm going to take a deep breath right now, pray for strength and good scan results. Then tomorrow when I wake up, I'll go through the 3 month "tradition" of getting scanned and waiting for results. Keep me in your prayers. I continue to believe in the power of prayer. I know what will help--I'll remember David's song. David's sweet song and the spirit of the holidays. Those are the traditions I love.

I feel better all ready!
Donna 

At the time of my diagnosis, three years ago, I was told I may live 5, 10, 15 years or more. Although this was presented in a positive way, I couldn't help but be angry at some one or some thing that would dare put a number on my plans! 

Over these past three years I have shared a lot with you as you followed my Caring Connections Network website. I have opened my heart to you sharing some of my deepest feelings and experiences. CCN has played a huge role in my healing and recovery, each opportunity to journal an update was an opportunity for a personal therapy session.

My cancer journey over these last few years has really taught me a lot about myself. I am a strong, brave, independent woman. 
I am a very spiritual person and gained a new relationship with God.
I learned to spend more time with the people in my life that matter most and to walk away from those who suffocate me with negativity. 
I have learned to prioritize things, listen more and laugh more! I learned to pray with my husband and do a better job of respecting my children as adults.
I was humbled by the true friendships that I have been blessed with and I learned that it's okay to let others do for you when you need it.
I changed careers allowing for that "feel good" job that so many people hope for. So many blessings in an awfully scary journey called "cancer ". 

I still have a lot of growing to do but that's okay, I plan on being around for a very very long time.

I hope you enjoy the holiday poem that I found posted on a message board. May God Bless you during the holiday season.

The Night Before Pink Christmas
T’was the night before pink Christmas
And throughout Cancer Land,
We joined with our sisters;
Each lending a hand.

We hung our pink stockings
In hopes of a cure;
While those done with treatment
All shouted, “No More!”

Some sisters donned their wigs
While others showed off new hair;
All hoping that Pink Santa
Soon would be there.

Then up on the roof top
We all heard the sound
Of jolly pink Santa
With pink Reindeer gathered 'round.

Be gone DCIS, IDC, ILC
Inflammatory, and all other breast cancers;
These ladies have waited long enough
It’s time for some answers!

Yes, now sing out with those words
They all have longed for
Let there be no more painful treatments
For them to endure!

“Too many have suffered!”
“Too many have died!”
“Too many new are diagnosed!”
Pink Santa now cried.

On doctors and scientists,
On scholars and nurses,
On all of you giving people,
Who have opened your purses.

Let me shout from the roof,
Let me loudly exclaim
They have found the cure at last
And t’was not for the fame!

No they found it for Amy, Nicole and Roz,
Carole, Pat, Robin, Christina and Heather;
Who while fighting their fight
Try to make others lives better;
For Nancy, Andrea, Ana,
Linda, and Giselle,
Who also stricken with cancer
Try to help their sisters get well;
For Peer Counselor's who’s knowledge
Gives new sisters the facts
And helps them as they struggle
To form a plan of attack;
Yes, for all of the sisters
Who fight so valiant a fight
We heard him exclaim
As he rode out of sight;
Let this be the start of a cancer free year,
With laughter and celebrations
Where once was just fear!!

-Original Author Diana LB

Merry Christmas and Happy New Year!

In a recent update I mentioned Breast Cancer Network of Strength's first
ever, survivorship conference. A 3-day event that brought together women
from all over the country, including Hawaii. We were all there for information, support and empowerment. It was a huge success. The conference was well planned with interesting topic sessions to choose from: Nutrition, Treatment, Prevention and specific diagnosis topics. 

There was also a very successful Expo area offering all types of services and purchases. I was one of the volunteers for the event and also participated in the review of scholarship applicants for those in financial need. 

A large stack of scholarship applications came my way and my job was to review them to help choose recipients of the scholarships that would allow them to attend the conference. I didn't take this lightly. With this stack in front of me I read each story and was brought to tears. I put all the applications back in one pile and decided to pray over this stack of paperwork.

"Dear Lord, please open my eyes and heart when choosing the recipients for the scholarships to those who truly need to be there." 

Scholarships were awarded and the attendance was well balanced. I was able to attend different sessions and listen to Oncologists, Scientists, and other medical professionals.

It was wonderful! As I explored the expo center a familiar face approached me. She had excitement in her face and said, "Donna, do you remember me?", and before she could get the rest of her words
out, I looked in her eyes and knew, she was the young lady nearly 4 years ago that approached me in Costco. This was my first outing with my bald head and silk scarf. The first thing I noticed about her at that time
was her beautiful curly hair, which she had tied up with a cute ribbon. I too was full of excitement and immediately said, "Oh my gosh, what happen to your curly hair?"...and we both laughed... "You DO remember me, I met you at Costco!", I told her, "Yes, I remember, I referred to you as the Costco Lady in one of my early website updates!" We talked for a long time and had dinner together that night. It was a lot of fun
as we shared experiences and found out we know some common people within our "Costco" community.

Hey Maureen - Don't' be a stranger...you know how to reach me now! And I'm loving the straight hair.

One of my roles at the conference was to greet everyone at the keynote speaker breakfast. This was a very special keynote speaker, Robin Roberts from Good Morning America.

As I stood in front of the closed door acting as a greeter/security guard. I watched the foyer area fill up with survivors waiting for the exciting breakfast event.

The foyer became very crowded as Robin prepared behind closed doors. 

While I waited for the okay to open the doors, I spent time looking around this full room. Ladies everywhere! Tall, short, thin and not so thin. White, black, Asian, native American and many more...

I'm watching, I'm thinking.... cancer truly has no discrimination. All of us in that room belong to a sorority of sorts that we don't want to belong to however; we have each other! 

What an awesome networking experience with a strong message. Truly a Network of Strength! At that moment I was so proud to be a part of this wonderful organization. Tears started to roll. Happy tears, grateful tears... I felt like what I do every day at Breast Cancer Network of Strength was validated right in front of me! Powerful.
The doors opened! I wiped my tears! We all listened raptly to this wonderful woman.

I look forward to next years conference and hoping to see more familiar faces. For now, I'll do my best to continue to ensure that each and every call into our YourShoes 24/7 Support Center is a quality experience.

For more information on Breast Cancer Network of Strength visit; www.networkofstrength.org

I'm a survivor, I'm a warrior!
Donna

New Friends at Life In Balance, a Breast Cancer Survivorship Conference

Agreeing to participate in this event (Thank you, Nancy!), was a huge commitment for me. This meant I would have to not only raise funds, but also train on my Hybrid Fuji bike (which I love), and boy did I learn a lot. I started reading cycling magazines right away and consulted with my bike shop as to whether I was okay on my Hybrid or did I need a racing bike. It was determined that I was okay with my Hybrid since it was a "ride" and not a "race" and also because my goal was to complete any where from 35-60 miles besides, I was comfortable with my bike. So I went for it.

My wonderful cycling coach Kim, met with me for long rides. We completed a 32 mile ride two weeks prior to the October 25th event and I felt comfortable with that under my belt. I shipped my bike and continued to work out with weights and cardio up until I left for the event. The big departure day was Thursday, October 23rd. It was a days event getting to Solvang and I was left with just enough time for a welcome dinner and weekend schedule meeting.

Day two (Fri) was spent putting bikes together, tuning up and a trial ride, 20 miles. The weather was unseasonably hot, in the 90's. I put the sunscreen on, put on my gear and took off for the trial ride. This 20 miles was a bit challenging. If you are familiar with Solvang, it is countryside of huge rolling hills or mountains, nothing in between. I made it up what I thought, was the first big hill. 

The instructor leading my particular group looked at me gloating in my accomplishment and then said, "Donna, THAT was not a hill!"
A little chuckle from the group and we were on to finish the 20 miles. It was a great ride, hot yet great. 

Once back at the hotel I simply could not cool down and felt sick to my stomach. Other symptoms as well made me think I had a bit of sun stroke. I couldn't eat a thing that night even though a huge pasta dinner was planned for this night before the big day. I went to bed praying I would feel better the next day. And I did. 

The ride team coordinator who is a professional cyclist and who organized the route and other aspects of this incredible event asked everyone the next morning bright and early, which route they were taking, 32, 55 or 100 miles. I told her I was doing the 32 mile and she said, "No you're not! You have to do the 55 at least! I saw you out there, challenge yourself Donna." Then she handed me the 55 mile route in print.

When she wasn't looking, I took a copy of the 32 route also, settling in my mind for 32 miles! And we were off...

There were 40 cyclists, 15 of them professional cyclists and athletes who knew the 100 miles would be a bit of a challenge. Then there were the others, like me. I was part of a 3 person team who signed up for the 32 miles. Bonnie, Ann and me.

About 17 miles into the ride we were stopped by the Ride to Empower roadside van. They informed us we made a wrong turn and we had to turn around and catch up...long story short, I ended up doing 50 miles that day! What a wonderful ride it was!

Solvang is wine country. Our route took us through the most amazing rolling hills and mountains. I made it up one mountain then ended up walking 1/2 way up the others. I'm not proud... remember it was a "ride" not a "race'. I even stopped to take pictures of the incredible landscape. Simply amazing. When it got really tough, I would talk to myself... "Come on Donna, if you can beat cancer, you can beat this climb and complete the ride."

If you remember in some of my early writings, my bike was my escape. An escape from dealing with breast cancer. Those feelings came back and they helped me continue on until I crossed the finish line. Next year, I'm going for the 100 miles! and yes, I made time for wine tasting!

***********************

Another memorable event this past month was the Breast Cancer Network of Strength's Gala Event, celebrating 30 years of completing our mission. A glamorous event held at the Fairmont Hotel downtown Chicago. The event included a cocktail reception, silent auction and dinner at a very pricy 500.00 a ticket.

Robin Robert's from ABC's Good Morning America, was the evening's keynote speaker. When this event was being planned I had dreamed of attending
yet knew it was too pricy for me. I decided on a personal mission: to find someone who would be able to "host" a dinner table at the Gala for $5,000.00 while allowing me to attend and also allowing me to invite two of my co-workers from the Breast Cancer Network Of Strength managers who live and work the mission with me every single day.

My attempt however failed. That's when my lovely sister Sue stepped into the picture and offered not only to take me as a guest, she offered to extend an invite to her friends to either come along or host one of my co-workers or both.

As it turned out, we had a table of 11 lovely ladies; my sister and myself, a few of my sister's wonderful friends and because of the generosity of two special people, Sue L. and Rebecca M., I was allowed to invite two of my co-workers to attend with me. It was a surprise to my co-workers and an absolute thrill for me to be able to have them with me. Roz Varon was a guest at our table, looking lovely as ever, and she personally introduced me to Robin Roberts which was an absolute thrill.

Sister Sue, Sue L. and Rebecca, a heartfelt thank you for making my dream come true. It was an evening I will always remember!

This past weekend, Nov 6-8 was the first Breast Cancer Network of Strength's Survivorship conference, Life In Balance. My sister Chari and I attended the entire conference which was filled with information, empowerment and support. 

Though I volunteered at the conference as needed, Chari and I still had of time to participate and meet some incredible women. While attending I was asked, "What piece of advice do you have for other breast cancer survivors?"

"Be your own advocate. Get a second and third opinion. Most of all remember, you have cancer, cancer doesn't have you!" (More on this later.)

I'm doing well. Stable is okay for now. I'm spending time reflecting on all the remarkable events that I have had the privilege to attend. Cancer still sucks, but I'm enjoying my journey while I can.

Stay healthy and happy.

Donna

Breast Cancer Network of Strength CEO Margaret Kirk and Donna at Lifetime TV, Living Proof Red Carpet Premier

MORE PICS

See a video featuring
Dr. Dennis Slamon

Well this past week was one of those times that breast cancer afforded me an incredible opportunity and I gladly wrapped my arms around every single minute knowing I will cherish this time for an eternity. 

A couple weeks ago I was invited to join my CEO, Margaret, from Breast Cancer Network of Strength to Lifetime Television's premier screening of the movie "Living Proof", a film about Dr. Dennis Slamon, who helped develop the breast cancer drug Herceptin, which I am currently on. 

As a matter of fact, Herceptin could possibly be the drug that keeps me alive. I was delighted by this invitation and shortly came to know that a premier meant that all the "stars" would also be attending this Red Carpet Event:

Harry Connick, Jr., Trudie Styler, Bernadette Peters, Amy Madigan, Amanda Bynes,
Jennifer Coolidge and any more....

Now stop and think..... A RED CARPET EVENT!! OMG! The butterflies started in my tummy right away...What will I wear? Who will I meet?, How do I lose 30 lbs in a week? (That really did cross my mind).

After I got beyond all that, I settled into the pure excitement of the opportunity to spend time with our CEO. Margaret is an incredible person and very busy business
woman. To be able to spend time with her meant so much to me. So there we were on Wednesday morning, September 24th, at O'Hare airport waiting for our flight to New York and the Red Carpet Lifetime Television Event.

We arrived to find a driver waiting for us who took us to the Trump Tower Hotel. I basically had a mini apartment for my one night stay. We got ourselves ready for the event and my butterflies continued to have a party in my tummy! I just couldn't imagine what was ahead of me.Was it really like E-entertainment on TV? Is there really a RED carpet? I was sure to find out first hand. Margaret and I met in the lobby and noticed two other woman waiting and dressed with a "pink flare".... "We must be attending the same event given your attire!" we stated.

One of them asked, "Are you attending the Living Proof premier?", when we answered "Yes", one of the women extended her hand as a greeting and introduced herself as Vivian Radkoff, the writer of the movie. Margaret and I were both thrilled to meet Vivian who also invited us to ride along in her gorgeous white stretch limo to the event. We chatted the entire time and heard about how Vivian worked on the film for over 7 years and how she selected the cast. She kept stating that this was "her" night, and she was so excited. Of course I knew differently, this was certainly, 'My' night,
and no one could possibly be more excited than me!

The limo arrived at the event perfectly aligned with the entrance of the red carpet. YES, there really was a Red Carpet. Vivian and her guest made their entrance as people around the red carpet looked to see who was getting out of the limo. Then is was my turn.

I came out of the limo and stood on the red carpet noticing people noticing me...I'm sure they were thinking "who is she?"...didn't matter, I was in my own heaven and was enjoying every minute of it. Around the carefully placed red carpet which was secure by roping, front and center, in front of the back drop that stated, "Living Proof", "Living Proof", "Living Proof"...(you get the picture), a large number of photographers waited for their opportunity. They each had 3 or 4 camera's a piece. Each camera had a different lens.

Our Lifetime TV contact noticed Margaret right away and came over to greet us. We were given a press pass to enter the Red Carpet Event along with specific instructions as we walked into the theater. One signal to start walking, another signal to stop-to allow for the introduction, and yet another to continue on into the Paris Theater. 

When given my cue, I began to walk to the center back drop, I also stopped on command and as I did, I was announced. "This is Donna Pelletier from the the Breast Cancer Network of Strength, she is also a Herceptin patient!"... at that moment the photographers called out my name one at a time..."Donna over here" (flash flash),
"Donna, over here" (flash flash). I moved to the request as they took my photo. I can not tell you how glamorous this felt.

Paris Hilton, Eat your heart out!! BTW-she wasn't there!

We preceded into the theater and strategically selected our seats near as many stars as I could recognize. Margaret was a delight. She let me select the seat and followed along. I noticed a row for Harry and his family, then seats for Renee Zellweger, Bernadette Peters wasn't far away and other faces were familiar yet nameless to me. 

We found our seats. One woman who was amazingly beautiful anxiously asked us if we would help her save some seats next to us while she left her mark with paper on several other seats. Little did I know that this woman sitting right beside me was the one that would make the night extra special. The theater quickly filled up and "stars" were everywhere.

It was so fun to simply people watch as they all came in to find there place. It was then show time. A gentleman came up to the stage for a proper welcome and addressed some of the specifics about the film. He then asked "Where is
Lilly?, Lilly are you out there?"... and the beautiful woman sitting next to me stood up. Everyone applauded. This gentleman explained that Dr. Dennis Slamon did wonderful work (he was not present at the event) however; without Lilly's efforts, his research may not have happened.

The film started. A wonderfully told story about Dr. Slamon and his passion and efforts to help women with Her2/nue positive breast cancer to thrive rather than die. His story is remarkable and his efforts to keep his research alive were continually challenged. At one point, all funding stopped which meant Dr. Slamon had to stop his research. That's when Lilly Tartikoff stepped in to help.

Dr. Slamon had helped her late husband (Brandon) when he became ill and then finally died and now Lilly wanted to help Dr. Slamon by gathering funds for him to continue and finish his dream of finding a hopeful cure to Her2/neu breast cancer. We find out during the movie that it was the Revlon corporation who finally gave the $2.5 million to Dr. Slamon's research all due to Lilly Tartikoff's efforts. 

As I sat there next to Lilly, an incredible sense of gratitude, love, spirit and faith had come over me. I was actually sitting next to one of two incredible people who are saving my life. As the film ended and the credits rolled, I couldn't help but turn to Lilly and call her by name. "Lilly, my name is Donna and I'm currently a Herceptin patient. I need to thank you for everything you did to help Dr. Slamon. It is very possible that you are saving my life!" and I started to softly cry. She grabbed my hand and asked how I was doing. I shared some things with her and then she insisted I meet Barbara, the first woman to be put on Herceptin and who appears in the film. Barbara and I spent some time chatting through the night and it truly was awesome to know how well she did with her treatments. She offered me hope.

The event continued on at the Plaza Hotel with a lovely dinner reception. It was very much like a wedding for 400 people. And of course everything was done with style. Harry Connick Jr. came by a table Margaret and I were sitting at and we briefly spoke. Renee Zellweger looked amazing and very busy entertaining those who stood in line to meet her. I decided to respect her privacy so she could hopefully squeeze in some dinner.

I met so many interesting people and spent quality time with Margaret that would not have otherwise come to be. I took only a few pictures thinking that it wasn't appropriate at times and the memories were locked in my head anyway. Wednesday, September 24th was an amazing day in New York City. I will forever feel honored and delighted that I was chosen to attend this once in a "lifetime" event.

Be sure to watch the film on Saturday, October 18th, Lifetime Television.

As far as my medical update-I'm coasting along on Arimidex, Herceptin and Zometa. I am due for a scan in mid October. I'm feeling good and praying for the best.

Stay happy and healthy! And Buy Revlon!!

Donna

Click here for Red Carpet Premier Pictures on Lifetime TV

Time Off!

During this past spring and summer I have had the pleasure of driving a Porsche Boxster convertible from time to time when my very generous neighbor is out of town extending this amazing thrill.

Being behind the wheel of this car has offered me time to reflect, unwind, relax and forget. Forget about the cancer demon and any other obstacles in my life. A warm, sunny day on the road in a convertible Boxster can do all this... How amazing!

I have a very good friend, Amy, who I met through the breast cancer journey (thank you Patti for introducing us!). Amy was also diagnosed with metastatic breast cancer and through our similar journey's we've shared our thoughts and feelings and it has truly been a joy spending time with Amy. In the past we attended a nutrition class for BC patients together.

We've met occasionally for lunch or dinner and we can talk for hours about life, our faith, our families and our true feelings when dealing with breast cancer. This includes our strengths, our weaknesses and our fears.

Last week I received a call from Amy with not so good news. Her breast cancer is now in her brain. This is the fear that every metastatic breast cancer patient dreads. Although Amy is in good hands with her physicians and the Lord, time flashes in front of you and you can't help but wonder, how much time do I have? The good news is that several patients have beat the odds and this diagnosis can also have a positive outcome.

With my neighbor out of town this past holiday weekend, I once again had the pleasure of driving what I call, my part-time vehicle and I knew exactly how I wanted to spend some of this driving time.

I called Amy and told her that I have something to share with her that takes all my worries away. That I could be over the next morning to pick her up for breakfast and show her. She was curious and asked, "What is it?". I simply told her it was a surprise and I would see her the next morning. On Monday, a gorgeous warm sunny morning, I pulled into her driveway at 8am in the Boxster convertible. Amy came out of her house with a big smile and a few giggles and hopped in for a ride.

We drove out west for a nice long ride and then stopped and had breakfast before heading back home. Once again we talked for hours and shared feelings and also asked the holy spirit to help both of us understand our journeys. Most of all, we were thankful for the wind in our hair (yes, we both have hair right now!), and we had a couple hours of Time Off from cancer. It was wonderful! Thank you Russ!

So if you see a shiny orange Porsche Boxster convertible with two ladies driving by who are laughing and giggling, it could be us, enjoying the blue skies, the wind and good company.

Amy, I am grateful for our friendship.

Please keep both of us in your prayers as we continue our journeys.

Hugs,
Donna

Post Script: Amy died January 26, 2010 from breast cancer. Click here to visit the CCN In Memoriam page.

I met with a fabulous Dr. today who took the time to review my complete breast cancer history and who also verified that I am currently under wonderful care with Dr. Cohen.
(they agreed on my current treatment plan).

I always knew Dr. Cohen has had my best interest at heart, I simply needed to educate myself on my choices and discuss what Is coming down the pike in breast cancer treatment/research. This Dr. was the one who could answer those questions.

Besides, being diagnosed in 2005 and then having reoccurrences in 2007 and 2008 is not my idea of success. Both Dr. Cohen and I welcomed this Dr.'s opinion and possible recommendations.
My take away was that if this 3rd diagnosis does not improve with my next scan, I should get a biopsy of the tumor(s) to determine if it truly is breast cancer. There is a chance that it could be something else. If it is breast cancer, she recommend a new treatment of Zeloda and Tykerb. If this fails me, she has recommended that I join a clinical trail she is currently working on that will start this Fall. (TDM1 Trial), for Herceptin/Tykerb failure. Clinical trials run in phases and late this Fall phase two of the trail will begin.

My sister Chari was by my side today during this second opinion and has truly been there for both Tom and I throughout the 3 years of Dr. appts. What can I say, but thanks Chari - " I love you more!"... Sisters are awesome and I can't imagine my world without them! Xoxoxoxox

Also a sincere Thank you to Roz. A true friend not only listens with an empathetic ear, they do make recommendations having your best interest at heart.
Thank you for guiding me in the right direction!

I meet with Dr. Cohen in two weeks and the two of us will review today's recommendations and make a plan.

I am in good hands with the Lord, Dr. Cohen, my family and friends!!

Donna:)

Vacation was awesome! A full week to forget about everything and enjoy two other families that
are truly dear to Tom and me. (We love you guys!!) Watching their children
this past week sure was
witness to how time flies. We've know these young people from diapers and all the signs of young adulthood were visible, poolside!

Monday it was time to head back to work and it was a rough one. I was advised that a good friend and colleague, 37 years old, lost her battle with metastatic breast cancer disease and passed away that previous Saturday.

Kendra Kirsch fought the demon for over 10 years and her body simply could not take anymore. As I read the death notice of her passing, I sat with my hands over my mouth and teary eyed. So young, so awful. WHY?

I have one fond memory of Kendra to hold on to. When she flew up to Chicago from her home in Houston to attend our annual boat cruise outing, the band was playing and the music was great. I said to Kendra, "Come on, lets dance!", she replied, "Donna, I can't dance, I'm no good at it."... I grabbed her hand and said, "Who cares, life is too short, we both know that. Lets' dance like no one else is watching!" And we did. She laughed and giggled and I have to believe she had a fun time. Kendra - I hope you are dancing with the Lord! Pray for me, Girlfriend from above while I continue my fight. You can click here to view Kenra's CCN In Memoriam posting.

I met with my Oncologist that Monday afternoon. He verified that that the scans showed just the beginning stages of cancer activity. He also presented several options for treatment stressing the "big guns" should be saved for when necessary. The "big guns" that he refers to is the chemo treatments that are still available to me.

We both decided that I would be given a new hormone therapy treatment to go along with my already routine Herceptin. I will be taking Arimidex, a daily pill which interferes with estrogen production in my body. My breast cancer is ER+ which means estrogen positive, the tumors need estrogen to thrive. By eliminating the estrogen, the nutrition to the tumor/cancer activity is cut off and the cancer can not thrive and grow.

I will have another PET and chest CT scan in two months to determine progress. Arimidex has few side effects which includes bone aches, night sweats and weight gain (oh joy!) Some colleagues who have taken this hormone have actually taken themselves off of it because the quality of life was so bad that they told me they would rather deal with a reoccurrence, yet a few others said it wasn't that bad. This proves everyone handles these cancer drugs differently. I am hoping this works for me with minimal side effects and that I can stay on this course of action for years to come.

I am seeking a second opinion out of a Chicago hospital. (Different from the other city hospital I first visited in 2005.) After that August 19th appointment, I'll have more to share.

Keep the prayers coming! Enjoy the rest of your summer, I will too!

Doing what I need to....
Donna

On Monday Tom and I went to my oncologist as planned. I had a pit in my stomach anticipating this meeting however; we were both feeling much better when we left this meeting. My PET scan showed "questionable areas of soft tissue in the anterior mediastinum" in other words, the very beginning presence of breast cancer.

In order to be sure this was the case and a tumor mass was not hiding some where, my oncologist requested I get a CT scan of the chest along with my routine brain scan and bone density test. I had all three done the very next day. The results were, a clean brain scan ( I still have some smarts), good bone density test and finally, the chest CT confirmed, no hidden mass or tumor, just the constellation like findings that were found on the PET.

This is good news. This means that I may not have to go back on the "big guns"...chemo, I may be able to take advantage of other options. I will be seeking a second opinion from a well know breast cancer specialist.

I am hoping that both Doctors will have a meeting of the minds to determine what is best for this particular diagnosis.

Next week Tom and I go on vacation and this has been well timed. The Monday I return I will meet with my oncologist and start some type of plan while I wait for the second opinion.

Continue to keep me in your thoughts and prayers, it means so much to me.

Without the support of my family,

friends and this wonderful website, things would be so much different.

With a smile and a lot of hope,

Donna

Life After Cancer....

What is that? Excuse my direct and honest update however; I can only wish to imagine, "Life without Cancer". . .

Summer has been wonderful. I told my husband, "This summer is my summer!, Unlike last summer when I was struggling through chemo, blown up like a balloon, bald and puffy....Not this summer!!"...

I started back on a ladies golf league and have so much potential! Largest handicap however; none the less, much potential. Ask my golf girlfriends, they are the most patient people on the planet.

I've also been taking long rides on my bike on the prairie path. Nothing like a long bike ride on a sunny day on the prairie path, truly makes me smile! I have a new stylish hair do . . . Colored, highlighted and fun....(three trims already....but who's counting?) Tom and I just celebrated our 28th wedding anniversary and took time off to go to a Cubs game. (see the photo). We had a great celebration weekend.

I've been going to my routine treatments of Herceptin and Faslodex to continue to fight the demon. In March I had my routine PET scan which came back clean and I danced with joy! This would be my summer. After a few weeks of golf, I was experiencing some back pain.
Really not much of a surprise since golf is an aerobic workout for people like me who swing too much.

The back pain increased over time and knowing that I have a high threshold for pain, I broke down and asked for a PET scan again . . . 3 months earlier than my routine.

On Monday, June 30th I had that PET scan and the following day I received the call to advise of good and bad news. No cancer in the bones however; new activity in the mid-chest area. Here I go again! My immediate thoughts were of my daughter. How do I tell her? I just pray to God that I am the one again and again and never ever her.

With that in mind, I am once again, for the third time, putting on my boxing gloves to fight the demon. I was shocked, angry, afraid, sad, TIRED! I had a flash back of myself dressed up for an event looking wonderful...my flash back was from some time prior to April 2005 when life changed forever. There is no life after cancer for this gal and I hate it. I'm entitled to!

On Monday, July 7th Tom and I will meet with my Oncologist to determine our plan of action. I will also seek a 2nd opinion. The good news is that there are several options for us with new medications just around the corner. This certainly is an emotional roller coaster however; as time goes on, I will hold my bald head up high and fight for every one out there that has to fight this demon.

Keep me in your prayers!

Donna

St. Baldrick's Foundation Event

In March my daughter Diana along with other hair stylists, donated their time to the St. Baldrick's Foundation by shaving heads of men, woman and children in an effort to raise funds and awareness for children with cancer.

Funds raised through St. Baldrick's events are helping some of the world's finest researchers to find cures for childhood cancer. The St. Baldrick's Foundation became an independent charity in late 2004 and began making grants in 2005. Funding applications are reviewed by a Scientific Advisory Committee, and funds are made available to pediatric cancer researchers in the form of grants and fellowships.

To learn more about the St. Baldrick's Foundation click below.

http://www.stbaldricks.org/index.html#

I am so proud of my daughter for donating her time to such a wonderful cause.

I love you Diana! More than you'll ever know....

I wish you and your family good health and happiness.

Donna

Hello Family and Friends,

Just touching base to let you know I just had my 6 month PET scan and it shows No Cancer! I couldn't be happier!

This does not mean remission, it simply means my treatment program is working and it's keeping the cancer under control. Prayers really do help as well, I think the Lord expects my extra special prayers around this time.

So I celebrate today and all the days ahead of me.

Wishing you and yours a very blessed and happy Easter.

Big hugs,

Donna

February 10, 2008

Time Away From Cancer!

I know I haven't offered an update in a while, it's not because I haven't been thinking about
those of you who think of me often. I simply needed some time away. Time away from cancer.

Every day I get up and prepare for work. Work that is extremely rewarding. I work for a non-profit
breast health organization, Y-ME National Breast Cancer Organization. My role is an important one
and I take pride in what I do to move things forward at Y-ME including participating in their Match program.

The Match program is an opportunity for breast cancer patients to speak to someone with a similar diagnosis
offering insight, hope and a shoulder to cry if needed. I speak to stage 4 breast cancer patients. I do this on my own time, separate from the job and in between ongoing to treatments and doctor appointments. One challenge I face in living and working with breast cancer is that many times I am seen as the face of cancer. I hear from people when they are not doing so well however; when times are good, I don't hear from them at all. THEY need time away from cancer and I completely understand; so do I.

This past fall I had a photo shoot for an '08 documentary on breast health. After treatment and tests that week,
and a long week at work including Match assignments, I made my way to the scheduled shoot. On the way there, it hit me and I started to cry - " I'm just tired of this cancer thing. I want it to go away." And in a moment I knew I was asking for something that wasn't possible. I got it all together and prayed to God that he would help me get through one more photo event and I would be done. D-O-N-E, done!! I did make it through and felt better knowing I would refuse future such opportunities. At least for now.

Recently I met my sisters and cousin for dinner. That week had also been filled with "cancer stuff" and that evening
I was to return a call to a patient seeking a Match call. As much as I love helping others and have made this my mission,
I struggled with the fact that this phone call was ahead of me. 

My cousin is a very special person, a true hero and it was no accident that we were suppose to see each other that night. My cousin is a very gifted woman who through her own fragile medical experience opened the Coach House of Naperville, a place of respite for families with medically fragile children. She spoke that night of recent personal tragedies in her family and how they made it through. 

My cousin Denise, put her needs aside and went to extraordinary measures to help someone else instead. It was a beautiful story with a positive ending. Bottom line, she inspired me all over again, validating my mission to also help others. After spending time with her, I couldn't get home fast enough to make that Match call. 

That night I spoke with my Match assignment caller for over an hour and once again, two strangers shared thoughts, experiences and encouraged hope for each other. I didn't need time away any longer. Although this feeling of wanting to be away from cancer is completely normal, I have learned to respect that, yet also I know how important It is for me to be there for others....no one should face breast cancer alone and I truly want to make sure this doesn't happen.

I recently shared a poem with the hotline peer counselor's at Y-ME. The author is unknown.

A person can live 3 weeks without food.
A person can live 3 days without water.
A person can live 3 minutes without air.
A person can not live a single moment without HOPE...

I'm back and loving life. Thank you Denise (CCN Board Member) for your continued inspiration to help me help others. God Bless everyone and me too!!
Hugs, Donna

Hello Everyone and Merry Christmas!

Thought I would share with you some good news!
I just had my tumor markers read (blood work) and everything was wonderful! To help you understand just how wonderful, you need to know the "norm"... It looks like this.

Test     Normal Score  July Results   Current Score
CEA     2.5 and below    1.1           0.9
CA27/29  35 and below     35           26 (In May this was 52)

Tumor Markers are one way to detect cancer activity and my numbers are indicating things are looking good! My next PET scan is in March, that is the whole body scan which tells all!

This is a wonderful Christmas gift and I feel very blessed. Keep me in your prayers as I do you.

Merry, Merry Christmas!

Donna

Hi Everyone!

I am feeling good and keeping busy. I participated in a bike for Breast Cancer event at my favorite imaging center In Naperville, IL. It was held on Saturday, Sept 30th at the Midwest Center for Advanced Imaging. What a beautiful day it was for a bike ride. The center conducted a health fair with all kinds of food and refreshments once you were finished with the ride. It was a lot of fun! A special "Thank you" to all those who donated to my ride.

I brought in over $700.00 to the Y-ME Illinois Affiliate which helps provide education and other resources to breast cancer patients and their families.

As most of you know my routine is to get a PET scans every six months and a muga scan (for the heart) every three months.

I do not look forward to these sessions however; going to the Midwest Center for Advanced Imaging makes it so much easier. The center is not only beautiful, the people are friendly and always have a smile.

Dr. Roy, with me in the picture, one of the two owners, has done a fabulous job of making the imaging experience as pleasant as possible. If you are due for a mammogram or need other screenings, check out the link below... You'll love them! Tell them Donna sent you...

http://www.mcairadiology.com.

This month is Breast Cancer Awareness month and lots of things are happening. If you get the chance, turn on ABC, Sunday, Oct 14th, 3pm - 5pm CT you will see me in a clip for "Frosted Pink". Enjoy! (I'm the bald one!!)

Smooth sailing for now! And I hope and pray for a long, long time.

Hugs,

Donna

Friends,

On Monday I went for my routine 6 month PET scan. This time I had to have a PET and a Chest CT scan, that is where the uptake (cancer) had shown up during my reoccurrence. I received the news the very next day, both scans were clean...no uptake which means no cancer.

Music to my ears! I really do feel better and I'm getting all my energy back, even my sassiness!

About a year ago this time, I was blessed with a new friend in my life, another stage 4 breast cancer survivor.

My new friend was diagnosed in 2006 and our paths crossed in such an unexpected way. I am so glad they did.

Last summer I heard that Roz Varon, traffic anchor for channel 7 news had stage 4 breast cancer. I was devastated.

Like a lot of people, I felt close to her just because I watched her and her team on channel 7 for years. I had heard about the channel 7 website and a special link called, "Notes for Roz" , I immediately went to my pc to investigate. I read her story and decided to send Roz a note of strength and encouragement. This note lead to a personal phone call from Roz.

We met for lunch and ever since, have relied on each other for support, encouragement, strength and someone to share with who actually walked in the same shoes.. An amazing friendship for which I am very grateful.

Roz is doing well and looks absolutely fabulous. She is an inspiration and pillar of strength for me. With Roz's permission I was allowed to share this personal note to let all of you know about my new breast friend, Roz Varon... Love ya Roz!!

Thank you everyone for continuing to check in on me. I'm doing well. Back to exercising, and feeling good. I sure plan on staying this way for a long long time....keep me (and Roz) and all those with cancer, in your prayers.

Stay Healthy and Happy!

Donna

Visit Roz's site here.

An Emotional Treatment Day

It may sound odd, but excepting my "new normal" revolves around treatment plans and on those days where I have to sit for hours to get meds pumped into my port, I look forward to seeing my "cancer" buddies. If, Gosh forbid, someone on my schedule doesn't show up I push to know why.

Are they okay?, Are they still surviving? That's the tough part.

Usually we show up sporadically throughout the day and catch up on how each other is doing and other life events. Yesterday's treatment day started in this familiar routine. 'Hi, Tony and Deb!, Hi Ester.'

We all look around to see that "sweet" Frank showed up as well. Every time I see this older gentleman, I want to give him a huge hug. We all chat, hear the latest struggles we are experiencing and then we also find time to laugh and recall the days when everyone had hair! Today another gentleman joined the group.

He appeared tall and strong as he made his way to the chemo room. Didn't say too much as he looked around. Then all of a sudden he commented, "This is the most odd room I've ever been in. Considering all everyone is going through in here, you are still smiling and laughing. How do you do it?" The room got silent as he sat there somber faced.

Some of us mentioned "the glass 1/2 full theory", some of us mentioned the fact that we have a choice, "fight it or start Living", neither of which he wanted to hear. I sat there praying to find the right words to share with him but my mind was numb. Then after a lull of silence, I looked at him and said,"Sometimes, you just need to cry over it and sometimes you don't! I've had my share of pity parties, but I've grown into acceptance."

His eyes filled with tears and then he went on to share with the group that when he laid down to go to bed last night, his wife held on to him so tight and said, 'I'm not ready to lose you!'

He started to cry. This tall, strong man began to cry. We all stretched for the right words to say but sometimes the best thing to do is listen. He continued to talk a bit and things seemed better. Someone brought up the hair loss topic again, and there we were laughing again, and our new friend was laughing too. When my treatment was over and I was saying goodbye to everyone, Ester reminded me that this was the last time I would see her. She was finished with her treatment.

I gave her a big hug and told her I never wanted to see her in this place again!! Everyone clearly understood.

I will miss Ester, she has a way of making the room a brighter place. To my friend Ester, "I wish you good health and happiness!"

I then turned to my new friend and whispered to him, "You hang in there!" And he smiled.

Tony was resting so his wife Deb walked out with me to take a small break from the room. Once outside I asked Deb how she was doing and her constant strength, which she shows in the chemo room with her husband, waned for a moment when I hugged her and she cried.

Tony is very ill and still fighting to live every day. We talked about a lot of things and I realized when I left this treatment session that there is so much to pray for.

My gosh, the Lord must be so busy just listening! I got in my car and sat there for a few minutes absorbing all that happened today and I began to cry. I cried for everyone in that chemo room. It sucks to be there! I will continue to go and I will continue to ask about my chemo buddies when they don't show up. If it's bad news, my heart breaks. It's all a part of the journey.

In many ways I felt "slapped awake". I feel good, I feel strong, I'm getting some hair. Yet I know I can go through this all over again, and again, and again.
Life is good! Starting living it.

Big Hugs,
Donna

August 6th, 2007

Tumor Markers

Every six months I get my tumor markers read. If you recall I mentioned this testing in one of my first journaling publications. I get two tests done that measure cancer activity. One is called the CA2729 Test, normal scores are 38 or below. The second is the CEA which should be 2.5 or below.

I was just informed that my recent blood work showed my CA2729 is 35 and my CEA is 1.1 This is great news! So although I am dealing with a few chemo side effects, the chemo has done the job and I continue to be cancer free. Another test I recently had done was the Mugascan. This is a heart scan which can tell you if your heart is functioning well. The drug Herceptin is known to have heart side effects in some cases.

My Mugascan came out just fine. Bottom line, all tests show wonderful results. My swelling is going down a bit and I'm looking forward to better days.

All in the day of a stage 4 Breast Cancer Patient. The next biggy is my 6 month PET scan which should be at the beginning of November. That test will tell all....keep me in your prayers.

Love ya,

Donna

July 24, 2007

I met with a Physical therapist who ruled out Lymphedema. That's a good thing!!

I then went to my oncology appt. for my monthly Faslodex shot, this is my new hormone therapy that I get along with the Herceptin, hopefully this will keep the bad cancer bugs away.....my nurse advised me that the Taxotere company said it would take up to 16 weeks for the swelling to go down. Lovely!!

So all in all, I am delighted I don't have lympedema and I will have to be patient with the swelling. I am on the hunt for major support hose so my legs and feet get some relief.

Thank you for your kind messages. I am so grateful for my friendships, you are all a blessing to me. I want you to know I am doing just fine, just going through the down

side of chemo side effects. Pretty soon this diva will be back in action!!

Watch out then!

Hugs,

Donna

July 22, 2007

The Good the Bad and the Ugly

July 21st, 2007

Yes, the good news is I'm done with chemo. The bad news is that I am experiencing every
single side effect possible, and its UGLY!! What other "girly" thing can they take away from me? My hair, my fingernails and toenails, and now I don't even fit in my clothes or shoes.

The chemo drug Taxotere is know to cause body swelling. Most patients experience some type of swelling which goes away over time. I had this same experience only my swelling is so bad that my Dr.'s office has been in touch with the drug company, filling out forms regarding my experience as a special "case." 

Nice huh? I miss my ankles... They are simply gone due to this water retention swelling. My legs, feet and arms have swollen up and the funny thing is the right arm is much bigger than the left. Because of this, I am being evaluated for Lymphedema on Monday. 

Lymphedema is caused by scar tissue build up that compromises proper drainage of the lynph system. In most cases this is cased by surgeries. In my case, I am being told that radiation can also induce Lymphedema. 

Keep in mind, I didn't have any major surgeries. If I do have Lymphedema, I will need physical therapy and will also have to wear a special stocking to get the lymph system working properly, then the swelling will go down.

I have to be honest, this is a very difficult time for me. I can't wear my shoes, even flip flops get tight and I feel like a person out of control. I've had my pity parties and my family continues to be so supportive - what would I do without them! Carrying this extra weight is just not fun nor does it feel good. It is actually painful at times. I am told this will get better over time, quite frankly, I'm tired of hearing that.

This sure is a test of my patience. So I am trying to be patient, its not easy.

It's GOOD to be off of chemo and I will get through these BAD side effects no matter how Ugly this may be.
I tell you one thing - once I can get those gym shoes on, I will never complain about exercising again!

Go out and do something good for your body today!
Love ya,
Donna

June 27th, 2007

Will it ever REALLY be over?

I had my last chemo session for this 1st reoccurrence of breast cancer on Monday. I was very excited to get beyond this and part of me wanted to jump for joy that it's all over, but is it really?

I would very much like to think this was my "last" chemo, but that is not necessarily true. Although I believe in the power of prayer there is a part of me that knows I need to pray for strength for what may lie down the road, like another reoccurrence. Its not always easy Living PET scan to PET scan to see what's happening inside your body however; if that's what I have to do, I'll do it.

So many times I see books or articles titled, "Life After Breast Cancer" or " There is life after Breast Cancer" and I can't help but think that they simple do not apply to me, a stage 4 metastasis breast cancer patient.

I will battle this demon the rest of my life much like a chronic disease. So my plan is to stay positive as possible, try to recapture a "norm" and stay cancer free as long as possible. Dr. Cohen has been very honest with me when sharing that it could come back in 2yrs, 5 yrs, 20yrs... Really no way to know. I do know that if it does show up again and in a short time, Dr. Cohen and I will have to look at an altogether different plan of treatment. It could be that Herceptin is simply not working for me.

Thursday Tom and I celebrate 27 years of marriage....God, I love him so much! We will celebrate with our children in Naples Florida where we rented a house for a week. Family connecting time, I am looking so forward to it and we have so much to celebrate.

I will continue to post updates here so keep checking on me. I love getting your messages, they keep me going.

God Bless and stay healthy.

Many hugs,

Donna

Hello my dear family and friends,

Today I have a chemo session, one of my two final sessions to go.

I am very anxious to get these two sessions over, It seems to get tougher and tougher as time goes On. A bit more fatigue, my nails are all turning yellow and they hurt. But the worst is my swollen ankles and feet (what a pretty sight). And I'm a shoe girl!!!! Ouch.

I have come to realize that one of my biggest challenges through this entire experience now and going forward, is acceptance. Accepting myself for who I am now. Cancer has changed me.

My looks and my outlook!!

I have to look my bald head and bloated body in the mirror every day and say "Your OK Donna, look at those pretty blue eyes, you still got it girl!!"... This may sound odd to you, but it is my personal therapy of acceptance.

I still live with "The Look" all around me. Do you recall that update?

Feel free to go back and re-read that story.

"The Look" doesn't bother me like it use to. It has actually offered me the opportunity to talk to others who have experienced cancer. I was approached on the train coming home from work one day. A gentleman sat across from me and began talking to me, " I notice your pink bracelet, are you doing okay?" - - as if the scarfed head didn't give it away. We struck up a wonderful conversation about his wife and his green bracelet in support of the fight against ovarian cancer.

She was not doing very well and by the end of the train ride we exchanged business cards and later that night at my support group meeting, a girlfriend who lives with ovarian cancer took his card to follow up with a personal call to this gentleman's wife. I left proud to help. So "The Look" is an okay thing, it is a connection of its own.

Well I'm leaving soon for my 4 and 1/2 hour chemo treatment. It is hard sitting there for so long. I bring work, a book, even a movie now and then...sometimes it helps, sometimes it doesn't...go figure. Please keep me in your prayers that the Faslodex shots (my new hormone therapy) along with the Herceptin keeps this breast cancer away. I can't bear to think of future chemo's at this point.

God Bless you.

Donna

"The Look" Update

Hello Everyone!

What an awesome experience Mother's Day was in Chicago. Our gorgeous city was lit up in Pink and the Y-ME National Breast Cancer sponsored their "Race to Empower!"

I can now say that I have participated in every Chicago breast cancer walk event. I have completed the 3-Day, 2-Day and now the Y-ME Mother's Day Race.

Of course the Y-ME Race to Empower holds a special spot in my heart because I spend every day supporting this wonderful organization and it's free services to breast cancer patients, their families and friends. I had my entire family with me and a few extended. I had a wonderful support group of friends and I want to thank everyone for coming downtown on Mother's Day and sharing this wonderful event with me. My family had a live "snippet" on channel 5, and then Tom and I were interviewed by the Sun-Times. My wonderful husband spoke in words of true Love, brought tears to my eyes.

I visit with Dr. Cohen today. Since I am officially Cancer Free (again)...

With 2 chemo sessions to go, we need to discuss next steps to stay cancer free for a long time.

I have also decided to participate in a breast cancer study being done by CINN, a Chicago Institute studying the benefits of regular brain scans for advanced breast cancer patients. I'll keep you posted on this process.

All in all I am doing well. I've had a few challenging days with chemo side effects however; when my days are good, they are very good. Thank God.

Thanks for checking in on me and do check out the pictures from the event below.

Hugs,

Donna

Andi & Donna

Pelletier Family

Tom, Greg, Tom

Donna & Patti

Bartus Family

Nancy & Donna

Read the Sun Times Story on Donna's participation in the Y-Me Mother's Day Event

Hello my dear family and friends,

Once again I have my cancer demons under control. I received my PET scan and chest CT scan results which showed NED (No Evidence of Disease)..

CLEAN! CANCER FREE! - For now.

I say (for now) because the fact is that a stage 4 Cancer patient is never really free from cancer, a clean test means we have more time however; it is highly likely that it will return. I just hope and pray that it will be much longer time than 21 months, but rather more like 20 or 30 years from now.

I sit here thanking God for the wonderful results of my tests and I am once again am reminded of just how precious life is. We are only guaranteed today! Enjoy it... No regrets.

I will continue with my 3 final chemo treatments, it just seems like the right thing to do. I have an appointment with my Oncologist on the 21st to determine next steps after chemo. Most likely I will be put on hormone therapy. I'll be sure to keep you posted.

Thank you for all the kind thoughts and prayers. My family and I are looking forward to the Y-ME Mother's Day Walk this weekend. Should be a lot of fun.

Happy Mother's Day and happiness always,

Donna

My Dear Friends,

I know it has been some time since an update. I have been trying to get my nausea under control and with each treatment meds have changed at this point. I had chemo this past Monday and so far so good!! Next week I meet with my oncologist for a routine exam and we will be scheduling a PET Scan and an chest CAT scan. I have had an awful cough since mid February.

Just this past couple of weeks it turned into bronchitis (more meds - oh joy!) The bronchitis is going away but the cough is not. I will be anxious for the results.

On a sad note, it hurts my heart to share with you the fact that one of my friends from my cancer support group at St Irene's has passed away. Marie Schmidt, a lovely young woman with a lovely family lost her battle to ovarian cancer. She always amazed me at how wonderful she looked and how she kept the cards of encouragement and prayers coming to me. I will miss her dearly and will remember her always. Please keep Eric and the children In your prayers.

This weekend is a fundraising event for my Y-ME Race. I will be at Lake Park West Campus tonight and hope to see You there!! Good music for the entire family!!

Thank you for checking in on me... I am still fighting, just a bit tired!!

Love and Hugs,

Donna

Friends,

Tomorrow is my second chemo treatment. I am not looking forward to it. My last treatment brought with it a week of bone pain and not much sleep at all. Since that time my Doctor has changed some medications and I am hopeful they will do the trick.

When I think back and compare my 1st chemo experience to today's, I think it did take a couple of treatments before the nausea and other side effects were under control. I did have to shave my head last week. Hair was every where so I just took the plunge. It was a hard thing to do this time around, I don't know why. I guess I secretly thought I would never have to do that again, and here I sit. Tom still tells me I'm beautiful. I thank God love is blind! :)

Working at Y-ME Breast Cancer Organization (www.y-me.org), has proven God sent. We have a wig bank which has made it the hair loss a bit less stressful.... Do I want to be dark, blonde or red today???? Hummm... Its my choice!

So as of tomorrow, 2 treatments down, 4 to go. Some time in May I will get a PET Scan to see how things are progressing along! I am trying to stay positive but the tears do come on and off...

This is a very spiritual week for me, holy week in preparation for Easter..

My favorite time of the church calendar. With my emotions running wild I imagine this will be interesting but that's okay, I call it personal cleansing.

On another note, my nephew Patrick and Tiffany had a baby boy this week - Conner Jonathon Morris - That's what makes life go round! We love you Pat, Tif and Connor... Sending kisses and hugs to you in California.

God Bless You and Yours. Have a wonderful Easter Holiday.

Donna

Round 2, Chemo 1

Yes, the boxing gloves are on however; I found myself walking the track at my health club the morning of my first scheduled chemo in tears! Guess I needed that. I just kept power walking until it passed and went about my day as best I could. My chemo routine of Taxotere is scheduled for every 3 weeks along with my herceptin.

Just as before, the day of and the second day are okay, it's the third and fourth that are symptomatic. I have a slight fever today but otherwise feel okay. My nurse did remind me that although I did pretty well through chemo last time, my body is different and I should be careful to listen to my body closely. I did find time for light humor in the chemo room on Monday. I noticed several "newbies" with their spouses getting a first treatment. They watched me as I stood up, unplugged my IV all by myself and grabbed my IV pole to take along with me to the restroom.

I stopped in the middle of the room and said "Its time for my pole dance!"... A few giggles, a few laughs - lightened up the room and then I admitted I was simply making a trip to the lady's room. It was a long day.

4 hours of treatments, so here I go counting down, 1 cycle down - 5 to go!

I will sure be looking forward to our family vacation the end of June when I will be finished with this chemo stuff. Keep me in your prayers, I continue to believe in the magic!!

Much Love,

Donna

Happy Birthday to me!!

Yes, 48 years young today and I have learned so much about life during the last 2 years!

I hope you are learning through me.

On Monday I start my second round of chemo. I will be receiving Taxotere along with my Herceptin which are administered through my port. This will be a 3 or 4 month treatment plan which will take me to the end of June. Just in time for our family vacation to Portland which I refuse to cancel. My Oncologist will schedule another PET scan in 2 months to determine progress.

I have to admit I am not looking forward to Monday. Some of the side effects are loss of hair, possible loss of nails, nausea and fatigue.

FUN! To prepare for all of this I will be visiting the drug store this weekend to stock up on remedies. So many of you have been a huge support system for me from the beginning and I can't express how touched I am that you continue to ride this rollercoaster with me.

I have family and friends praying for me and sending plenty of well wishes.

I am so grateful for that! I continue to prepare for the Y-ME Walk to Empower on Mothers Day. That is sure to be a wonderful yet emotional family event. Please visit by clicking here to sponsor me and the Caring Connections Network walking team.

As a metastatic breast cancer patient (Stage 4), I knew the likeliness of this breast cancer returning was very high. I often wondered if I could be mentally and physically strong enough to go through this a second time, not to mention a third or fourth time like many do. Well, I'm there And although I do not like the idea of chemo, I am grateful for meds that make it possible for me to even have the choice.

Keep me in your prayers and I promise to keep you informed.

Fondly,

Donna

March, 2007

It was 21 months ago that I had my routine PET Scan that showed I was clear of cancer.
I was on chemo for 12 weeks and my stage 4 Breast Cancer which had spread to my spine, ribs, hips and knees was gone! I continued my treatments to include 6 full months of aggressive chemo and then 37 radiation treatments and life slowly became back to "normal"...My weekly treatments moved to every three weeks and I loved it!

Tom and I were able to reschedule our 25th wedding anniversary trip which was postponed due to my illness. We spent a wonderful week in the Dominican Republic last month and it was awesome. I recall silently thanking the Lord for this time with my favorite person in the whole wide world, as I watched him lay back under the grass covered hut with a "stogie" in his mouth reading a book- (and people watching!) with the gorgeous ocean right in front of us... I felt so blessed. We both enjoyed every minute with each other. As always. the vacation came to an end and our 86 degree weather turned back into 15 degrees with a lot of snow, That's okay by me, I firmly believe "there's no place like home".

It was a treatment day on February 22nd, and I went for my Doctor visit as well. I felt great and my exam proved to be positive. My Doctor scheduled my 6 month routine PET Scan which was done the following Monday, February 26th. That afternoon I got the phone call that I knew would most likely happen some time, however; it didn't make it any easier. The PET Scan showed cancer activity in the lymph nodes near the sternum in the mid chest area.

Here we go again!! This is the new "normal" for a stage 4 breast cancer survivor. I reminded myself that many people with the same diagnosis go through this three, four or even more times, but that didn't help. As Tom and I drove to my Doctor appointment to discuss the results, we drove in silence.

I think we were both numb. I remember feeling like I a small girl on my way to my 5th grade physical..." I really don't want to go to get that shot... Will it hurt?"... "Do I have to go?"...... Funny how that feeling has never left me.

Our appointment with my wonderful Doctor went very well. He was very positive and assured me that this was not life threatening, just a bump in the road. I had to remind myself that stage 4 BC is a chronic illness, hence the purpose for routine PET Scans to stay on top of things. The Doctor discussed with us a few options for new treatment which will be finalized next week after a series of blood work is completed.

What really bothered me is that I felt so fine, not a pain or any indication that this demon had returned. Because of that, I insisted on a brain scan. Breast cancer very often goes to the brain. So next week my labs and scan will be read and the Doctor, Tom and I will decide on how to proceed. I am putting on my boxing gloves for "round 2".... I will win!!

Please keep me and my family in your prayers. I will be sure to keep you posted here on my website.

God Bless you and thanks for checking up on me. I am ready to fight--again!

Many hugs,

Donna

Hello Friends,

Over the past couple of weeks I was notified that a High School classmate had passed away from breast cancer. Her breast cancer metastasized to her brain and eventually took her life.

Hearing this was terrifying for me. I had a rush of nausea and numbness. I wanted to know "Why are women still dying of breast cancer today?". I asked this question to my oncology nurse and I also spoke with Dr. Susan Love who wrote the book "Dr. Susan Love's Breast Book" a wonderful resource which is listed on my 'Donna's Library Page'. In both cases it was explained to me that cancer tumors are very different from one another. If I have a reoccurrence there is no way to know
that my cancer will be the same type and how it will respond to treatment. Some cancer tumors are aggressive which make treatment difficult. Bottom line, listen to your body and take the necessary steps toward good health.

I continue to get my Herceptin and Zometa treatments every three weeks. I get tumor markers read every 3 months and PET scans every six months. My next PET scan, (I call it the tell all scan) is scheduled for March. I am feeling well and count my blessings every single day.

I am preparing for the Y-ME Mother's Day Race and am currently seeking teammates. Click here for more information or to make a donation. 

My role as the Y-ME Quality Assurance Manager is going well. I speak with breast cancer patients on a daily basis offering support as much as I can. I also have a new support system for myself. A new friend who was also diagnosed with stage 4 breast cancer and we have committed to see each other through this journey. I am grateful for her friendship and encouragement.

In closing I would like to remind you of one of my favorite phrases;
"You may have cancer but cancer doesn't have you!"

Be strong and keep fighting.

Donna

Hello Friends,

This year sure has been an adventure. When you look at me today you would never know the cancer journey I have been through over the past 20 months. Sometimes even I forget how grateful I should be. This past week my niece Jess, sent me an email sharing that her coworker has a husband with cancer.

They were managing through several treatments and it seemed to be a rough time for both of them. Jess shared my personal story with her coworker and got this reply. "Stage 4 Breast Cancer? Are you sure? I don't think many people live with stage 4!"

My niece seemed surprised and then followed up with a phone call to me. She said she had tears in her eyes when her coworker replied, that she had not truly realized all I have been through. "You always seem so strong and you are doing so well now... it's hard to believe all you've been through." I needed this phone call.

I also needed to be reminded that my journey was a blessing with many lessons learned. I have spent too much time lately concerned about silly things like "weight gain", "my hair" etc... I needed to be reminded that I am an amazing miracle and should not spend so much time addressing superficial matters. I thanked my sweet Jess for her phone call. It made my day! It set me straight.

During the 2006 year I have met many amazing people. Courageous people who have faced the challenge of life as a "cancer patient" and spend a lot of their time helping others get through this awful journey. One of my own coworkers was diagnosed with breast cancer in her mid 20's, years ago. She's been a Y-ME Hotline peer counselor helping others deal with BC and now after 20+ years, a new primary site has been diagnosed. Just when you think you've got things under control, BAM... You get surprised.

The other day I was asked "Are you in remission? Does that mean you are cured?" Truth be told, I, like other stage 4 BC patients deal with "remission" on a 6 month calendar. That's how often we get our scans done to see if things are still okay or if a new cancer site has been located. I am told that my BC disease is like a chronic disease, one that we simply need to keep under control.

So if or when it shows its ugly face again, I fight back with continued prayer and meds just like I did the first time to regain a healthy cancer free body. And I will fight!

I have recently been speaking with other stage 4 BC patients. One of whom has agreed to be my "New Breast Friend, Stage 4 Buddy/" We keep in touch to compare notes and encourage each other. I am so grateful to have this friendship. Some one who completely understands the ups and downs of this life long journey.

The coming year of 2007 is going to be a wonderful year. I am planning a week's get-away with my sweet husband (a delayed 25th wedding anniversary trip) to the Dominican Republic. And then a 10 day family vacation in the summer with all the children. A wonderful thing to do before our last one heads off to college. I am really looking forward to that. We are hoping to move to a new home in 2007, a part of our downsizing plan.

And, I am counting on wonderful PET scans results all year!!

With that said, I wish for you positive thoughts for a healthy and happy 2007.

Remember all the blessings in your life. Enjoy your holidays and be safe.

Donna

Friends,

This past year has been a time of healing for me. Part of that healing process has involved trying to learn as much as I can about my cancer and another part of my healing process was done by trying to help others.

As many of you know I am now working with Y-ME National Breast Cancer Organization, a role I truly love. It has been 3 months and I continue to learn about the specifics of breast cancer.

This past month I attended a conference in New York, "Living with Metastatic Breast Cancer". As I sat in the auditorium of Sloan Kettering Cancer Center that old feeling crept up. As I looked around at 400+ people who share my cancer experience, I couldn't help but think, " I don't want to belong to this club!".

Once I was over that I settled in for a very interesting conference with respected guest speakers and a new gained knowledge of what to expect in my future. A few MBC (Metastatic Breast Cancer) patients shared their experiences. One woman shared that her family and friends don't know quite what to do with her.

They say things like "you tell us you are not in remission, you are not cured, and you certainly are not dying, we don't understand!".

Another shared the "elephant analogy," MBC is like constantly walking behind a huge elephant, looking right in its rear end. On good days you can look around it, over it, under it but none the less the rear end is right there in your face. On other days all you see is that big fat rear end and nothing more.

Although funny, it's so true. The darn elephant never gets out of your way to let you pass, it is always there and you just hope it doesn't back up too quickly. Being at the conference reminded me that I am very blessed, very lucky and yes, with a chronic disease. But today I feel great!

And that's the key, enjoy today. I met a lot of admirable people and was glad I had the opportunity to attend- Thank you Nancy!

I just love the holidays and we are getting all decorated to have the Pelletier clan over on Christmas Eve. (that could be aprox. 60-80 people) This may be the last Christmas in this house, we have decided to downsize. I have mixed feelings about this venture.

I am waiting for the snow!! It just can't be Christmas without it.

I wish you and your family a blessed holiday season and good health and happiness in 2007!!

Enjoy the Day!
Donna

NEW ON 11/02/06
FAITH IN THE FACE OF CANCER-
DONNA SPEAKS @ THE CNS HOME HEALTH & HOSPICE

Click to see Donna speak at opening & closing ceremonies of the AVON Chicago Breast Cancer Walk 06/06

Click here to see a video of my talk at the Avon Expo 03/06

See pictures from the event at the bottom of the page.

Read Donna's Story on the AVON 2 day website.

Friends,

When I decided to pursue the possibility of starting a web-based resource and support for cancer patients, their families and friends, I knew it would be an awesome thing. A place where a patient or family member could keep loved ones updated on the patient's cancer journey with the click of the mouse.

During the beginning stages of this project I got such a thrill just knowing that something so practical could help so many people. What I didn't spend a lot of time thinking about was how it would continue to support family and friends when those that we love lose their battle to cancer.

This past month one of our Caring Connection Network subscribers, Annie Johnson, lost her battle to cancer.

Annie Johnson was a very loved woman. This was clear when her special friends joined together to buy her a Caring Connections Network web page. I spoke with Annie a couple times while helping her get her page site up and running.

She was a delightful person and naturally we shared stories and personal feelings. It was with great sadness that I was informed of her passing and I must admit that it hit me hard. I was told of the news just minutes before I was scheduled to be center stage at a fundraiser for Central Du Page Hospital's CNS Parish Nursing Program.

I was the guest speaker presenting my experience on faith and healing. I couldn't help but think of Annie while standing at the podium. My condolences go to Annie's family and friends. As you grieve over your loss please keep in mind that I truly believe she is in a happy place, smiling big and without pain.

God Bless you Annie, May the holy spirit guide you to eternal peace. Dance and sing with the angels!

Sincerely, Donna
 

Click here to see the talk I gave that day.
Here to visit Annie Johnson's page, here to visit Annie's In Memoriam entry.

Hello Friends,

Fall is here! A beautiful time of year with the leaves turning and falling.
I love this time of year just because jeans and sweaters are some of my favorite selections from the closet.

It has been a very busy time of year for me. As many of you know, October is Breast Cancer Awareness month and this makes for an extremely busy time on the Y-ME National Breast Cancer Organization Hotline. I was also busy this past month participating in Delnor Hospital's "Women's Walk for Wellness". This was a 5 mile walk through beautiful Geneva and Batavia. It was a chilly Fall day but a wonderful cause to support by being outside and walking. I am feeling pretty good these days, thank God! Truly!

Aside from my monthly cycle returning (unexpectedly), all else is fine. Yep, you heard me... The only benefit of chemo for me was that it forced me into menopause eliminating my monthly "friend" as they use to say.

Well, surprise, surprise. After 1 1/2 years, my "friend" decided to visit once again! And once again and again. I am told this is unusual, but does happen. This could be a one-time thing, or my cycle may return to normal.

Lovely!! - Since I am on Tomoxifen, there was concern about uterine cancer because of the bleeding. I had an ultrasound and biopsy of the uterus and everything was just fine. Just a sign that I continue to be pre-menopausal.

Central DuPage Hospital has a program called "Parish Nursing". I was delighted to hear how CDH offered an opportunity to combine prayer with medicine. Since their budget was cut this year they are doing a fund raiser on October 29th, at the Hilton Lisle which will include a luncheon and fashion show beginning at 1pm.

I am honored to have been asked to be the guest speaker. This is the first public function where I will be able to openly talk about the religious component of my breast cancer journey. I am looking forward to sharing my story and supporting such a worth while program.

If you are interested in attending, please send a note to my email (click here) and I will get you more Information. Enjoy the Fall time. Play in the leaves and enjoy Halloween.
Wishing you good health.
Donna

Hello Everyone!

Life is busy as a city commuter these days and I am loving my new role
with the Y-ME National Breast Cancer Organization. It’s a good feeling
having a job that gives me the opportunity to help others each day.

I had my PET scan a couple weeks ago and finally got the results. Everything looks wonderful, no cancer activity present! Life is good.

I participated in the Delnor Hospital "Walk for Women's Wellness" this past weekend. It was a 5 mile walk through Batavia and Geneva IL to raise awareness for women's health. I continue to love getting outside to walk and hope to do so as much as possible before the snow season is upon us. 

I am still going for Herceptin and Zometa treatments every 3 weeks and as I share my story with my new co-workers, who are also breast cancer survivors, I am reminded that I am a walking miracle. I have signed up to participate in the Y-ME Match program. A program where other women diagnosed with stage 4 breast cancer will have the chance to talk to me looking for strength and encouragement. I look forward to that.

It is officially Fall time and the leaves are turning and falling. Very soon October will be here which also means "Breast Cancer Awareness Month". Be sure to use the mammogram calendar on the CCN home page to schedule your check up. Enjoy the Fall Time.

I wish you good health always,

Donna

Aboard A Train I call "Destiny!"

I've always believed that things happen for a reason. My journey with breast cancer was no exception.

I am not saying that I was given cancer for a special reason but rather that because of the cancer I have come to have a better understanding of my spirit and sense of self.

I often spoke to the Lord during my dark nights asking him, "What is the purpose?", yet through silence, I went on day by day being as positive as I could waiting for the true lesson. One day surfing the net to share updated cancer knowledge with you, my CCN visitors, I came across the Y-ME National Breast Cancer Organization website.

One thing lead to another, I offered to volunteer on their support hotline and my inquiry took me to a different job offer which I recently accepted. I am now the Quality Assurance Manager for the Y-ME National Breast Cancer Hotline.

This new position takes me to the city a few days a week with my main office being in my home. When I do go to the city, I have decided to commute by train and what an experience this has been.

Those of you who know me well would understand why I had to take a "mock" trip of my commute prior to actually starting my new position. Gosh forbid I not know what to do or where to go on my first big day and I certainly didn't want to have to worry about such things. So I made my way to the city via train the week prior to my start date.

It was a beautiful morning, I was early to the train station. As I waited with my coffee in hand I noticed one other commuter approaching the platform. This person walked past me and directly to the yellow line which outlined the "danger" zone of the train tracks. He stood in a particular spot right on the yellow line. I thought it odd but didn't really think about it too much - until, another commuter came up on the platform and with all the open room to wait, he walked right over to the other commuter standing on the yellow line and parked his body smack right up next to him.

Now I'm thinking, "that's weird", they are standing shoulder to shoulder, not speaking with all this room around me to share. As more and more commuter arrived for the train the pattern became clear to me. One by one they lined up next to these two people until they were six people wide, then the lines formed behind them and grew deep.

I figured this commuter ritual out and just like a big girl, I stepped up to the group and got in line as most were doing. I too was now a commuter. When the train approached the station it stopped with it's doors right at the feet of our waiting group.

We filed in one line at a time. Once onboard everyone was silent. No "Hello's", no smiles, no nothing! Now I know there are friendly people out there in the morning, I just didn't think they were awake yet. One person behind me sneezed. I turned around and said "Bless You"... A couple of dozen people looked at me like I had disturbed the peace!... "My", I thought, "I better stay quiet".

Each day that first week of the new job I grew more like the rest of them. Cherishing my morning "wake up" train ride and brought along my headphones or reading material to take up the time. Once in the city I felt at home and loved my new role with this wonderful organization. There are a lot of cancer organizations that raise funds to support research and awareness. I am grateful for all of those organizations however, Y-ME National Breast Cancer Organization upholds the mission to ensure through information, empowerment and peer support that no one faces breast cancer alone.

If you recall, in my first paragraph written for the Caring Connections Network, I stressed the importance of support during any cancer journey. This is why Caring Connections Network was born. Today I am reaching out once again through an organization that shares my mission and passion. It feels wonderful! So is this the reason for my cancer journey? Could this be the purpose of my cancer journey? I plan on doing a wonderful job of helping others and making sure that everyone who calls into the Y-ME hotline feels the mission in action.

I do believe in "destiny!" How about you?

Stay healthy and happy.

Donna
www.y-me.org

Hi Everyone,
Hope your summer is going great and I'll bet it's going just as fast as mine.

I received this story in an email from one the AVON breast cancer walkers and wanted to share it with you.
God Bless!!
Donna
 

Hi Donna,
Hope all is well in everyone's worlds and that your blisters are all healed up by now.

The other day I was in a grocery store and I happened to be wearing one of my t-shirts from the walk and a random man came up to me out of the blue and asked me how far I walked (he must have been somewhere in his 50's is my guess). When I told him all 39 miles and then some, he took my hand, said "God Bless You" and thanked me very much for every step I took.

He caught me off guard when he came up to me cause I was wandering aimlessly down the aisles lost in my grocery list thought and when I looked into his eyes, he had a tear. He must have been touched in some way in his life by someone with breast cancer although he didn't really say anything else.

I thanked him for noticing, shook his hand and told him that it is one of the best things that I've ever done. We chatted for a few more minutes about the event and then we both smiled and went on with our shopping. I saw him one more time a few aisles away and at this point he was with his wife and he introduced her to me. She also thanked me for walking and for helping to raise awareness by even continuing to wear my shirt. We shared a few more words and then off I went.

As I continued to wander around the store, I didn't come across them again but the impression that they left in me made me realize once again what a difference we all really made and how many lives we continue to touch to this day. I was really moved by their warmth and it brought the memories of the whole weekend back up again so as I continued to shop, tears were now in my eyes.

I want to thank you all, once again, for everything about that weekend. I look at this as one of my greatest accomplishments in life, being right up there with having my kids.
Take care and enjoy life!
Cindy

By Cindy Swanson, CCN Avon Walker

Click to see Donna speak at opening & closing ceremonies of the AVON Chicago 2-day walk

28 strong, the Caring Connections Network Team
Raised over $60,000 in the most successful AVON Walk anywhere, ever!

PRODUCTIVE VISIT TO THE PRODUCE DEPARTMENT

Walking through my local Dominick’s store as I shopped for my produce a woman approached me in her neatly done Dominick’s hat and apron. “ I love your hair cut”, she commented.

I of course thanked her. She asked me where I got it done and I told her my daughter was my stylist and shared her location and name. 

I then told the woman that I appreciated her stopping to give such a nice compliment, that my hair had been “new hair” due to breast cancer and the super short cut was very different for me. 

She listened closely and proceeded to take off her hat. She showed me her very short but beautiful “new” hair. She also shared that she had been a cancer patient and was just about to get her first hair cut. I asked her more about her illness and she gladly shared her cancer story. She also shared that she just had her second PET scan which showed everything was clean. 

I couldn’t help but hug her and when I did, we both started tearing up right there in the produce section. I congratulated her and she knew that I was aware of how wonderful this news was to hear. 

That moment made me realize more clearly part of who I was. I was a woman who will always be a cancer patient. Like it or not, that is my life and hers. I too will sit on egg shells every 6 months as I wait for the results of a PET scan. I will be having that test done this month and I am already anxious inside. 

Before I left Dominick’s we exchanged names and I gave her the web address for Caring Connections Network knowing there is so much that she could benefit from there, then off we both went to go about our days - being forever grateful for each and every one of them. 

That day I felt both lucky and blessed all over again! Reminders like this are good. It is a reminder of just how far I have come. However, like any chronic illness, metastatic breast cancer like many cancers has to be managed on a routine basis. And it will never completely go away.

Donna

See a summary of the AVON Walk in Chicago that features Donna

PEOPLE NEED PEOPLE

This past weekend was the Avon Walk for Breast Cancer in Chicago. As many of you may know Caring Connections Network had a team of 28 walkers that raised over $60,000.00 for Avon's mission to end this horrific disease. There were nearly 4,000 walkers this year that raised a total of 8.2 million for the cause doubling last year's total.

I was honored to be invited to be the opening and closing ceremonies guest speaker. With my family, friends and teammates at the front of the stage I was given an opportunity to tell my story and how much it means to all cancer patients that funds continue to be raised to combat the assorted cancers that affect millions.

It was a tearful and heart-felt speech. At the opening ceremony my mission was to make sure that each and every person, whether a walker, contributor, support provider or caregiver knew just how important their role is in finding a cure. I also knew this weekend would be one that would change their life forever.

During the 39 mile walk I spoke with many people. I did a lot of listening and sharing. I cried with some and hugged others. Everyone had a story to tell.

A story that solidifies my belief that People need People: as guest speaker I was given a special sash to wear for the entire walk. This sash was a symbol that every 3 minutes a woman is diagnosed with breast cancer. Other ribbon sashes were also handed out among the walkers to pass on to each other every three minutes in memory of those just diagnosed. At the closing ceremony I returned my ceremonial sash to the event coordinator for safe keeping until the next walk in Denver where the guest speaker there will do the same. I signed the ceremonial sash, and wrote;

"People need People", hugs, Donna J Pelletier.

I would like to thank my teammates for all their efforts, I could not have asked for a better team. I want to thank my family for being there after I walked through the finish line with smiles, hugs and flowers.

To all my cancer patient friends, never give up hope! Fight like hell and although you continue to fight this awful disease remember one important thing; You may have Cancer, but Cancer doesn't have you!! 

Please check back right here in the next few days to see more pictures and an inspiring video of the event.

God Bless!!
Donna

A Special Easter!

Easter is the most sacred holiday of my faith.

I have always looked forward to Easter Mass and the celebration of our Lord and Life. This year it had an extra special meaning to me.

It's hard to believe that one year ago, April 27th, I was diagnosed with stage 4 Breast Cancer, a moment in time that will never leave me. I remember my first thoughts, "I'm too young for this", "I have my whole life ahead of me", "I want to be a grandma some day".

Yet over this past year I have realized something, Cancer has no age! Men and Women, old and young, children of all ages are affected by this terrible demon called "Cancer".

If you were to ask me how I got through this experience, I would have to share with you that I learned to surrender myself to the Lord. I truly put my life in his hands and with the support of my family and friends and an abundance of prayer, I am still here today and cancer free.

Last Easter I prayed over many thoughts. Thoughts of gratefulness for good health and happiness and prayers for my loved ones even those that I have lost. I never guessed I would be faced with such a life changing experience in a few short weeks to come. Although I have grown spiritually and personally over the past year I know many who have faced cancer that have not been so fortunate. I question faith at times when I hear of such things. What is faith if you can't question it? I have met cancer patients through my personal Caring Connection Network website.

A young boy I have never met sent me a note of well wishes. He wrote, "We sort of have something in common, and its not good but I hope you get well."

I have also met cancer patients at the local grocery store. I can't help but notice the bald head and pink caps on other women. I try to decide if I should approach them and with my best instinct I do most of the time.

Several of these women were breast cancer patients and it was not their first go around. For some it was their second or third time. I remember the first time someone approached me in the store offering all kinds of support, I was so touched. I only hope those that I have reached out to feel the same way.

One young woman remains clearly in my mind, a beautiful young woman who I met at a birthday party. She was 20 something, newly married and a breast cancer patient. It broke my heart. She was angry, can't blame her. Her beautiful bald head was evidence of chemo which had already robbed her of the chance for motherhood.

She shared with me that her Doctor allowed her to freeze her eggs before chemo in hopes that her and her new husband could have a family some day. I still think about this young couple who just started their life together and were faced with such a challenge. So today at Easter mass I prayed once again over many thoughts. I thanked God for being there by my side over this past year and I prayed for continued support in understanding the purpose and plan of my journey. I also prayed for all cancer patients everywhere, that they too find comfort and support and peace on their journey to wellness. I added a special prayer for all of you that are caregivers. You are angels on earth!
I look forward to a new year filled with health, happiness and good times with family and friends.
Enjoy Easter's greatest gift, Love!!
God Bless you,
Donna

Donna is participating in the Relay For Life in Summerfield, Florida this weekend.

I Have Many Sisters! 

What a wonderful experience, being invited to be the guest speaker at the Avon 2 Day Breast Cancer Walk Expo. The Expo was an opportunity for participants and potential participants to get information on the June 3rd and 4th event. Information on donations, training, packing and lodging were all provided. Overall, it was the place to be to find out what the Avon 2 Day was going to “look” like. It was my role as guest speaker to share what the event would "feel" like. 

There was a large crowd of men and woman who were there to help raise money to fight Breast Cancer. Booths were set up for everyone to visit and get the information they were seeking. When I arrived at the Expo I was greeted with open arms from the coordinators. They surprised me with a “Survivor” cap and I immediately put it on my head. I was also given the opportunity to share the knowledge of Caring Connections Network with the attendees.

I took full advantage of this by greeting people at the door with brochures and roaming around introducing myself. One woman who I noticed, noticed me from a distance, approached me with a huge smile and put her arms around me and said “We are sisters, I am also a breast cancer survivor.” This connection was an awesome thing!

She was absolutely right; we are sisters, sisters that share a common bond that one in every 7 women experience. We spoke for a while, laughing, sharing stories, hugs and teary eyes. 

We both understood what each other had been through and it was nice. I’ve always known the importance of sisters but now it has taken on a whole new meaning for me.

It was stage time and I got up in front of the crowd, shared my experience, my gratitude and my heart felt thanks for everyone who was walking or participating in the Avon 2 Day Event. 

My story hit home for a lot of people and I don’t believe there was a dry eye in the room. I succeeded in sharing what the event would “feel” like and it will feel wonderful! You can view my talk here and scroll down to the bottom of this page for some pictures.

Caring Connections Network currently has 13 walkers in our group and it continues to grow. We are all “sisters” walking to help be a part of the solution to end Breast Cancer. Please consider sponsoring one of our walkers by making out a check to: Avon Walk and sending to: Caring Connections Network, PO Box 454, Warrenville, IL 60555.

We will be walking in honor of your loved ones who have been touched by breast cancer.

Donna 

A Health Care Reality
This week while I sat at in my Oncologist's office waiting for my appointment, I overheard my doctor talking with a patient in the reception area.

This elderly gentleman had just come out of his office visit where they were discussing the next steps of his treatment. The doctor highly recommended a special test for this gentleman which I imagine would provide a clear picture of what the next steps for this patient should be. 

The receptionist listened intently for direction from the doctor on how to assist in scheduling the test, but of course the first step was to get insurance approval. 

This older man who stood there devastated with cancer was told that his insurance would not cover the cost of this test. Medicare denied him this important test.

As they shared this information with this gentleman he hung his head as if in state of shock and worry. He managed to look up at the Doctor and inquire about paying for the test himself. “What does a test like that cost?” he asked. The Doctor reply, $3,000. Without hesitation the gentleman said, “You’ve got to be kidding, I can’t pay that.” The doctor turned to his receptionist and asked her to try to find a place where his patient could have the test completed at a lower cost. 

My heart ached for this man and yet this kind of thing happens all over in many medical offices on a daily basis. I wished with all my heart I could just write a check for this man. Instead, all I could do was say a prayer that somehow, some way, the man could get this critical test. This experience also made me aware of how lucky I was to have such good health care.

Finally it was my turn and I was called into the treatment room to sit down in the recliner and receive my weekly Herceptin. 

I shared the reception room conversation with my nurse and told her how sick it made me feel. She understood completely. She shared a few of her own experiences regarding other patients with inadequate health care.

The nurse told me of a woman who is currently undergoing chemo treatment with severe nausea. The one medicine that they were certain would help her was not covered by her insurance company ($150.00 a pill). 

She also added that some of the drug companies used to distribute samples which would have come in handy during a time like this however; samples were becoming a thing of the past. 

Sure makes you think doesn't it? Do people with better health care get better treatment? Would the price of medicines be so out of control if we had generalized medicine? It all breaks my heart. 

This is one reason why I have chosen to participate in the Avon 2 day Breast Cancer Walk in Chicago on June 3rd and 4th. Unlike some breast cancer fundraisers, this sponsored walk supports funding to people with inadequate health care. 

After my experience this week I know I am doing the right thing for a lot of people. Please join me by making a donation to the cause. To make your donation or simply get more information, visit - www.avonwalk.org. Join me in helping others get the medical attention they need.

Donna Shares Her Story at the Avon Expo In Chicago
March 4, 2006 Harper College


Donna's Avon Team Walkers Meet

Carrie & Donna at the Avon Expo

Send messages, comments, good wishes or questions to Donna by clicking here.